Sufferers of
Morgellons disease complain of invisible parasites biting their skin. And they get skin lesions from which sprout strange fibers. And mysterious black spore-like specks appear on their skin. Cases of this strange disease
seem to be spreading, especially in the Bay area. One theory is that it has something to do with Lyme disease. Or it may be a case of mass delusion. The medical community
seems to think it's mass delusion. Most people who show up complaining of these symptoms get diagnosed with 'delusional parasitosis', which is a psychological problem in which people imagine that they're infested by parasites. Not having any medical qualifications at all, I won't weigh in on whether this is a real disease or mass delusion, but some of the behavior of the patients does sound suspiciously bizarre. Take the case of Theresa Blodgett:
She gathers up the black specks, the mysterious fibers and the small, fuzzy 'cocoons' she finds on her skin and around her home. She tapes the macabre samples to typing paper, but she said no doctor will analyze the collection. Physicians who glance at the specimens dismiss the lot as stray hairs, clothing fibers, scabs and other common household debris, she said.
So either she really is suffering from something and is desperately but unsuccessfully trying to get doctors to pay attention to her, or she's obsessively collecting house dust and stray flecks of dirt and convincing herself that these things are parasites attacking her. (Thanks to 'K' for the links)
Comments
she was going to tell them how doctors have been treating people with Morgellons
Disease.
At this point her phone went dead and he DID NOT call her back. She didn't call back
either...she'd had most of her say.
Now, I get mine with him.
My mom is 65. She is a spunky old gal. People mistake her for "a little old woman".
They get the shock of their lives when they try to pull something on her!
She is smart and extremely quick witted and sharp minded.
He's floating up Crap Creek. :gulp:
Hugs for all these docs who are in fear. Where is the hypocratic oath? Gone, I should say. None would dare investigate, none will admit what we know, yet none will EVER hug you.
If not, why not?
I have been in contact this afternoon with my internist. He wants ME to come see HIM. I must have gotten his attention with whatever I told my nurse. However, he is a brilliant, open-minded physician, who takes time and does his study.
He believes God (sorry Rod, I know you won't believe THIS) had called for him to be a doctor at the age of 13. He is now 47. He came here after years of practice from Memphis Tennessee. If you're from these parts you know that Memphis is notorious for producing excellent doctors. He came here because he knew that we don't have any really good physicians.
You have to put your name on a waiting list to get to see him. I was on that list for 2 years!!!
So, I have an appointment with him to discuss new information about Lyme, Erchilosis, Babesiosis, and Morgellons.
A microbiology professor at a local university is EXCITED about what they are seeing! I told him the folks that have Morgellons aren't too excited, but I hoped it moved him to action. It has...more to come.
I wish I could contact Dr. Joseph Burasscano. I've scoured the net looking for how to contact him and the only way I can figure to do so is to start contacting web sites that feature his name. Anyone know how to get him???
I am willing to fly to NY at this moment to become a patient if he'll have me. I wonder how many others that are aware of his work would do the same?
Bad, painful day...
Later
Nite raoul
A test was done in several motels and hotels across the country, some very high-class expensive ones, and all of them had these fibers on their supposedly clean sheets as well as other areas of the rooms. This was not done by a medical professional, as they surely could not be bothered with trying to figure this out, so it won't be published in any "Peer Reviewed" journals. But it's 100% accurate, nonetheless, and I hope you never spend the night in one of these places while your immune system is down.
More doctors and scientists know about this than are admitting and I daresay if we come to this forum two years from now, the discussions won't be about whether it exists or not. Instead, the posts will be from people begging for help!
BTW, Lymebusters is not a name for a disease, it's a place for people who suffer from Lyme and/or Morgellons, and the numbers are growing daily. The people who started it are totally dedicated to helping others. As for Morgellons, it was started by a Biologist whose son was suffering from the disease. The name is not important; through years of intensive research, Morgellons was found to be the only disease resembling what we suffer today so that is what it's called. And yes, there are many dedicated and brave doctors affiliated with Morgellons who will not stop until our suffering has ended.
I could care less whether anyone believes me or not, time will prove to be a downfall to all the skeptics, who will probably be suffering while we all are finally cured and getting on with our lives.
It will be pure heaven to see all those tables turned.
I am obsessed. I appear obsessed. What do YOU think I am obsessed with??? 😕
I think that I am obsessed with, or should I say "blessed with", ignorant, not stupid, dr.s who want to put my mom on a schizo drug because he thinks that she is just making these symptoms happen to her because she is delusionary of parasitosis. I am obsessed with the fact that Dr.s need to be made aware of what is going on with this disease, as well as Lyme and associated tick-bourne illnesses. I have an appointment with the top two dr.s in our county. One is an internest and the other a G.P. Funny, they are quite interested in what I have found and want further information from me.
If I appear nuts to you, you won't be the first. I've had one dr. tell me I needed a psyhciatrist because I couldn't pee. He couldn't find anything wrong with me, and he informed me that he doesn't believe in Fibromyalgia Syndrome so I must be crazy, huh? As in an earlier post, I stated I saw my Gyn two days later who had to dialate my urethra because it was almost completely closed.
But it was all in my head.
Does that sound familiar to anyone out there with Morgellons? Ask the people who have posted here saying they have Morgellons to reveal how they've been treated by their physicians.
As far as "delaying serious inquiry", in your opinion, it may seem so to you. However, I am a supplier of information to three dr.s and one t.v. station where I live. Why do they not see me as "rambling"? Because they see my passion and my commitment to the cause of getting people informed about what is going on. Because they see me wanting to seek out and reach out to others who have these diseases so they will know they are NOT NUTS!
My "ramblings" are points I make and my opinion. I am entitled to those, as you are yours.
Come walk in my world, annoyed, and see why I am on this board. There are those who need to speak and those who need someone to listen. I am both.
Hi Rod! Where you been???
you're not fooling me with that tooth filling story. I read that book as a kid, too.
I is all diet, I want share it with you. Once I committed myself to this, I shed off the mites, parasites and mange from my skin and surroundings,,,,I have helped a few people out there,,,you have to stay on the diet, which will not hurt you,,,,no pomegranite juice needed here.
For the past month I have been treated for Stenotrophomonas maltophilia infection. First 3 weeks I had extreme Headaches, Medium to High Fevers, etc., on a daily basis, which shows that there is a Bacterial Infection. I have 2 more months to go, about a week ago my Fever broke, and my headaches for the most part disipated.
I am slowly getting better. There are some vivid photos at
http://www.morgellonsusa.com
It is my Websight, however there is a great error that I need to fix,....
Where I called certain Cysts, (Lyme Borrelia Cysts) as they tested Negative for this.
I believe they are a form of how the Fibers grow in segmented links, compacted and hard until they burst open, the Cysts were from the Digestive Tract, and all other samples came from my skin,
Also, I found a glass bead in the bathroom once, that had the same Fibers growing on it, Wherever there has been Moisture,......
Stenotrophomonas maltophilia is known to grow on plastics, glass, etc.
Take care,
Jay- .(JavaScript must be enabled to view this email address)
I think that when unwell people take the time and trouble to discuss this awful disease we should applaud, not censure, their undoubted bravery.
From my research, it would seem that there may sometimes be a link between Morgellon's and a concomitant bacterial infection, as well as a link with certain parasites invading the body.
I most certainly do not think that people who are exhibiting the clinical features suggestive of Morgellon's are suffering from Delusional Parasitosis.
That is not to say that such a psychosis does not exist. Of course it does, but common decency should tell us that we should not be using this term pejoratively, because those who suffer from this are very ill.
What is society coming to, when the sick cannot expect either to receive an accurate diagnosis and treatment, or even much in the way of kindness and support from their fellow human beings?
I don't know who you are and that does not matter.I just want to thank you for your compassionate message here and you have stated the exact message I have wanted to convey but could not find the right words.
I am one of the sufferers of Morgellons and have gone through hell, but possibly not as much as others here have gone through.
I found an understanding infectious disease specialist, as well as friends who have helped me find alternative, agressive, natural treatment that is finally getting me well. It has been a wild ride and I want everyone who has suffered with disease to have dignity restored, proper diagnosis made available and treatments made available to get rid of this stuff readily available. We have "cracked the surface" in getting there, but we need more people with a voice like yours to help speed things along. Thank you, from the bottom of heart.
PS - To those out there who have been critical and judgemental - I am NOT delusional and I have returned to work in a very well respected position!
Good Luck! .(JavaScript must be enabled to view this email address)
http://www.dpref.com
I'm looking at your website now and you're funny as hell! HA!!! I love the delusions. They look EXACTLY like the delusions that I had!!!!!!!!
You know what? I think we've been mass hypnotized!
Drop me a line sometime at .(JavaScript must be enabled to view this email address)
that has to try and make a buck off other
peoples missery....you may indeed of had it
or a something like it....if i had the answer
to this plague!....I would gladly give it to everyone!....and my payoff would be in knowing
that i helped another person.
southcity
"collembola (springtails) found in scrapings of patients diagnosed with delusory parasitosis"
http://www.headlice.org/report/research/index.html
http://www.prweb.com/releases/2005/5/prweb241522.htm
http://www.prweb.com/releases/2005/8/prweb274087.htm
radio interview-07/15 WBAI Public Radio NYC
"when it isn't lice or scabies"
http://www.headlice.org/news/index.htm
If it were nematodes then nobody would be getting the delusional diagnosis
CDC-useless
Health agencies are aware, think it's a "fluke" and that it will go away on its own, and that's why they won't acknowledge.
I never buy Safe2use stuff.
Am being treated for collemboliasis.
Believe it or not--it's the truth--you'll see one day
who the heck are marc and steven-like i care
pHs nothing is invisible about this disease. As you can see he's quite photogenic.
and they are still finding collembola in people's skin scrapings.
I thought Springtails was a form of nematode. Nematode, springtail, hookworm these are all secondary. Focus on the bottomline. The fiber, the black specs and how our immunity failed us AND how to get it back, permanently.
My daughters friends at the local college say they just took this on as a study. I was relieved to here word is getting around. They, as I do, think it has alot to do with allergies and mites. That could explain the doorway. Let's wish them luck.
The NPA stands for the National Pediculosis Association, a non-profit health and education agency founded in the early 80's to spread awareness about harmful scabies and lice pesticide treatments.
NPA mission statement:
http://www.headlice.org/special/mission.htm
They got involved with this new situation because they started receiving calls from people with these strange symptoms and didn't think it was possible that all these people were delusional. And they been trying to help ever since.
You may have asian nematodes. If you've been diagnosed and treated and cured of it, then congratulations. There are many people who have also been tested for various parasites, including nematodes and have tested negative. Eventually these people are diagnosed with delusory parasitosis.
All the patients in the NPA study suffered from biting, crawling, rashes, etc.
Please just read it. It's a legitimate study conducted under the auspices of the Oklahoma State Department of Health.
http://www.headlice.org/report/research/index.html
download the full PDF file.
There are also other reports of collembola infesting man from throughout the past century.
If you don't want to believe the study then fine, i care not. BUT there are people out there who don't know what the heck's going on and are suffering, lives are being destroyed, people have killed themselves because of this condition, there are children suffering and all i would like to do is let them know about the study. Let them know that they are not crazy. knowledge is power u know. It's easier when you know what your dealing with. and hey why not, at the very least, rule it out?
So please stop making uninformed statements about the NPA, and the collembola research.
Go to the site, watch the videos, look at the pictures, read the press releases, listen to the radio broadcast.
just stop calling it "morgellons"
i hate that name.....nobody told "morgellons" foundation (the MF-ers, haha) that you're not supposed to name a disease before you know what it actually is.
PS its not nematodes
I know it's been sometime since I've posted, but I try to keep up the reading anyway.
Dawna, you are infected?
Paul, you are infected or not?
cerulean (sorry if I spelled that wrong!) are you also infected?
WHERE'S ROD? DID HE DIE????
I missed you! Glad to see you're still here!!!
Dwana, my mom and I went to an Infectious Diseases Doctor.
Her GP and my Internal Med Doc sent us to the same one! She is very well versed in Lyme Disease and is from the Phillipines.
She diagnosed me and my mom with Lyme and mom with Morgellons.
I am not infected...yet. I am hoping that the regimine of antibiotics and a paticular line of product will do the trick for me.
As for my mother, she has been taking Bactrim and Biaxin for over 3 months. Her lesions are gone but she is still finding a few "critters" every now and then.
I forget where I learned about the Bactrim and Biaxin. It was Dr. Harvey from TX I believe, in an article I read somewhere on the net.
I understand that right now, the ideal treatment, if there is such a thing, is Rocephin IV drip 3 days a week for a period of months.
This alone can wreak havoc on your system.
Her "delusion" is being helped by these two anti's. You just have to find a doctor who is "willing" to listen to you, AND get on some kind of GOOD product. Something that will help heal you naturally with vitamins, minerals, proteins, etc. I know nothing of the aforementioned products.
I have tried two different companies products and they are both excellent.
I keep in contact with a lady who posted on here earlier, victoria. She has been taking a particular companies products for about 4 months. She returned to her Lyme Specialist, who also diagnosed her with Morgellons, (yes, that's what name he used), and he was as amazed as was she.
She has been declared and does fully assert that she is Lyme and Morgellons free!
I don't dare tell you that company though! Not here! Someone will swear I am tryig to make a buck even though I don't sell it!
If you would like to know what it is, maybe Alex could email me and I could give him the name of the company and he can send it to you. Likewise for anyone else that reads this. Or, maybe he could check it out and post the link himself.
I don't want to get "booed" off the board for saying "use this, it's a miracle cure"! :roll:
That is one reason I haven't posted my info here - and have been very low key at other sites. I just don't want people to think I am trying to "make a buck" either. All I know is that the stuff you mention helped me get well and I have shared that good news with a few other people in the hope it will do the same thing. I KNOW I needed the antibiotics - but the other helped and is continuing to help my immune system heal - it is allowing my body to heal itself from whatever condition made it "RIPE" for the Lyme and other co-infections. (Including what is being called Morgellons!) It is something I will probably take for the rest of my life. I am just thankful someone took the time to tell me about it and I am thankful you are taking it too!
Funny how delusions can be so painful, huh?
I think at some point, we won't need the anitbiotics anymore!
good,
I have never had any problems except for hearing, and I don't think deafness is a psychological problem well, some may believe that one just doesn't want to hear. Ha Ha...
Anyway, I dont live in these areas mentioned, not even close to them. But, I do experience the symptoms. After the bite feeling a small area like pimple forms, so does anyone have a clue of how to help stop these symptoms. Because from where I am coming from it may not be psychological but feels like it can drive one out of their mind.....
please let me know if anyone knows something to stop these feelings....
.(JavaScript must be enabled to view this email address)
please and thanks for your insight....
Collembola-the most abundant anthropod on earth
http://www.infectioncontroltoday.com/hotnews/59h812451976037.html
Go ahead and tell your doctor about "Morgellons", I'm sure he needs a good laugh.
come on, I feel sorry for you all,,,,yes doctor don't know morgellons, and parasitologist thank morgellons.org is a rip off, where is the advice from 40 doctors on this????
this is a skin parasite which is prevelant in ASIA,,,it is her enow like Bird Flu which will do more damage than this this year in the WORLD,,,extimate 20M will die world wide,
see my pals site, pal, because his diet and plan helped save my life,,,,,get it and get on!!
http://www.be-healthy-forever.com
I knwo the man wnats to bag it and go out on his boat accross the world, but he really thinks he can help all out!
not me babe!!
get well!
joke....
"buzz off"
Find a freebee chat room to argue with people...
your views and sarcastic remarks make me hate that we are living in the same world...
As for you who keep bringing up scabies and lice... Come out of your dark age world... Lice is a bug... not a f**king parasite... and you can see it.... Save that for another rainy day...
But, as for those of you that feel your own veiws should be believed then why not allow someone else's views being looked into as well, but, no you obviously are a male... why do i say that? Egotistical, arrogant, self-centered....
Leave your arguements for the court room bud...
People come on line to discuss things to see if someone else has the same symptoms... not to argue with people... If you want people to see your side... where is your website Huh?
Get a Life... But, dont lash out at people when they don't even know what the hell they are dealing with... No one really knows until the facts are proven Right.... Are yours proven...
you don't want to see beyond the word "headlice" in http://www.headlice.org.
Yes, their mandate is to spread awareness about lice...BUT...when they started getting reports about this strange new skin disorder (which some refer to as "morgellons) the NPA decided to study it (along with the state of Oklahoma Health Dept)
What they found was that collembola (springtails not headlice) were infesting people.
Yes it is proven scientifically:
http://www.headlice.org/report/research/index.html
here's another independant study from swedish researchers in 1955 (which has been ignored by dr's):
http://www.headlice.org/swedish
Now, just because they say "headlice " in the web address, doesn't necessarily mean that they are talking about headlice. So try and work past that.
once again:
http://www.infectioncontroltoday.com/hotnews/59h812451976037.html
It's a species of collembola---and no they aren't visible--they are microscopic, in fact the first juvenile stage of these creatures are no bigger than a human liver cell--to top that off they are non-pigmented, so they blend in with you skin.
Collembola infestation=morgellons (you're not supposed to name a disease before it has been properly recognized by the medical community, the morgellons people don't understand that)
Understand the springtails are but one of the problems,,,look beyond that to Tropical Disease Creeping Neamtode of Borneo,,,spreading like wild fire,,,even CDC acknowledges it now. All the Morgellons symptoms and more,,,,so look beyound,these are larval migran mircoscopic worms,,,,see them in your skin,,,look like miniture veins, but they are not!,,,feet area.
And Collembellia (or whatever they are do eat nematodes!!!),,,where there is fire, there is something burning!!!,,,get it!!!
I know if you have real good healthy immune system you don't get this!!!!,,,food for thought,,,think next time when your at Dunkin Donuts!!!
joke....
"buzz off"
Find a freebee chat room to argue with people...
People come on line to discuss things to see if someone else has the same symptoms... not to argue with people... If you want people to see your side... where is your website Huh?
Does anyone else find it ironic that these views were posted NOT on a Morgellans website, but on the Museum of Hoaxes?