Morgellons Disease: Is It Real?

image Sufferers of Morgellons disease complain of invisible parasites biting their skin. And they get skin lesions from which sprout strange fibers. And mysterious black spore-like specks appear on their skin. Cases of this strange disease seem to be spreading, especially in the Bay area. One theory is that it has something to do with Lyme disease. Or it may be a case of mass delusion. The medical community seems to think it's mass delusion. Most people who show up complaining of these symptoms get diagnosed with 'delusional parasitosis', which is a psychological problem in which people imagine that they're infested by parasites. Not having any medical qualifications at all, I won't weigh in on whether this is a real disease or mass delusion, but some of the behavior of the patients does sound suspiciously bizarre. Take the case of Theresa Blodgett:

She gathers up the black specks, the mysterious fibers and the small, fuzzy 'cocoons' she finds on her skin and around her home. She tapes the macabre samples to typing paper, but she said no doctor will analyze the collection. Physicians who glance at the specimens dismiss the lot as stray hairs, clothing fibers, scabs and other common household debris, she said.

So either she really is suffering from something and is desperately but unsuccessfully trying to get doctors to pay attention to her, or she's obsessively collecting house dust and stray flecks of dirt and convincing herself that these things are parasites attacking her. (Thanks to 'K' for the links)

Health/Medicine Psychology

Posted on Thu Feb 10, 2005



Comments

You'll find this amusing, J. Hairy just promoted me to doctor...

"Dr. Rod, what is your diagnosis?" "I'd say Jerks and Tools, Dr. Hairy... Do you concur?" "I do concur, Dr. Rod- Jerks and Tools". - From Internet UFO Hoax
Posted by Rod  on  Wed Mar 09, 2005  at  08:14 PM
IS THERE ANYBODY OUT THERE?????
Posted by jaleenasmom  on  Fri Mar 18, 2005  at  07:12 PM
NO. Is there anybody in THERE?
😊
Posted by Rod  on  Fri Mar 18, 2005  at  08:05 PM
I wanted to let anyone know who reads this that I know firsthand that this condition is 100% real. I also would like anyone who is suffering from this condition to know that there is a cheap experimental treatment available that worked great for me. i am not part of a sales gimmick/team nor am I affiliated with anyone selling the product. I'm telling you this because there have been so many scams with this subject and I fell for many of them. This product works. That is, providing you have the same condition. --so if you have anything close to the strange skin condition where fibers emrge from skin and you feel invisible crawlies and the doctors cant help you, you may want to try this. It's $35. it is a powder. I"m not sure what is in it but they claim it is all organic. It cleared up my condition in only days and i had it very bad. I thought my life was over. The company offers a money back guarantee. I forget how to contact the company who has this stuff but you can contact me and I'll find it for you. I would be glad to help anyone who is suffering from thie condition. I hope this works for you. you may contact me at globalsoftware@
Posted by Helper  on  Tue Mar 29, 2005  at  03:09 PM
HA!

We'll definitely be getiing hold of you with THAT email address. "It's just $35 bucks! What have you got to lose?" Umm, about $35 bucks, you freak.

Anyway, I found this wbsite...
"Health experts tell KXAN that while Morgellons patients are not cured, their skin conditions almost always improve once they begin receiving treatment for lyme disease."

Which kinda goes with what I said about this just being lyme disease symptoms.

And I found this which was definitely not written by someone with delusions of any sort...
😉

See, jaleenasmom? You didn't think I'd actually look in on this every once in a while, did you?
Posted by Rod  on  Wed Mar 30, 2005  at  01:29 AM
HI ROD!!!
My life's been crazy as of late, but I'm glad to see you're still there.
TO HELPER: I would like to get in touch, however someone removed your address.
If you could post the name of the powder and where I can get it, it would be helpful. My mom is getting to her wits end.
Rod, my mom's test came back 1st a negative, and now we know she's positive for lyme.
hmmmm...a "false" negative...isn't that a hoot?
Anyway, I am getting tested today, wish me luck.
Had to have a shot of cortisone in my wrist about 4 days ago. I have lost the use of my left wrist and hand for about 3 weeks now and the pain was more than I could bear anymore.
Seeing a Rhuematologist today. He's SUPPOSED to be the best in the USA.
I'm glad to see you're looking into to this with a more open mind, and I hope and pray that you are correct...that all it will take to cure this crap is to treat for Lyme.
Later
Posted by jaleenasmom  on  Wed Mar 30, 2005  at  04:50 AM
I removed half their email, because it seemed like they were either spamming or had some kind of scam going on. I mean, they can't remember the name of the company, but if you email them they'll find it? And who but a spammer has 'globalsoftware' as their email username? Anyway, I think the second half of the email address was verizon.net, if you really have to contact them.
Posted by The Curator  in  San Diego  on  Wed Mar 30, 2005  at  08:27 AM
This is a reply that the CDC sent to me about MORGELLONS. Thought You might like to see what they have to say......

Subject: cpFW: Morgellons Disease
Date:Thu, 17 Mar 2005 15:55:00 -0500
From:"CDC Public Inquiry" <[email protected]> Add to Address BookAdd to Address Book
To:[email protected]

CDC has been aware of patients' concerns about a skin condition knows as Morgellons Disease for some time; to date no parasites or other agent have been identified as the source of disease.

Specimens received directly from patients are typically not appropriate for diagnostic purposes. CDC laboratories are available to examine clinical specimens received from physicians or health departments to try to clarify the cause of disease. CDC encourages people who think they have Morgellons disease to work with their physicians to seek appropriate diagnostic testing.

Thanks,

Public Inquiry
CP
Posted by Paula  on  Wed Mar 30, 2005  at  08:40 AM
You know...ROD...people with this condition do not listen to folks like you. You're the type of people who have caused this type of condition to be thought of as "imaginary"....or "delusional". this condition is very rare and very real. I know people who have lost their entire lives over this disease. I, for one have moved 3 times and left everything I owned behind. Can you imagin what it's like to buy al new clothes in hopes that you'll get rid of an invisible & unexplainable infestation only to find that it's still with you and now you have to buy new clothes? No ROD....$35 is like a penny when you have a condition like this! I've read some of your posts and I don't think anyone here takes you seriously anyway. You're obviously a person with many talents....talent just isn't one of them. I agree with "jaleenasmom" ....i think you are a moron to say what you did. You may have ruined an opportunity for someone to get their life back for a mere $35! Do you even know anybody with this skin condition? If not, how can you even comment on it by backing your info with a story of an 'iceage' that you read in an 80's issues of national geographic? ROD....you seem to be a person who reads too much, too fast, while taking it all in by filtering it through your opinions and dismissing everything which you personally just don't believe in......That is not how you arrive at a factual finding----or "proof". UFO's? Ice-Age? Folks,There's a saying.....that goes: "Never argue with an idiot- people might not know the difference"

What do you really believe in Rod?
-Peace
Posted by helper  on  Wed Mar 30, 2005  at  09:15 AM
You're an idiot.
I'm not entirely sure how Rod is supposed to have 'ruined an opportunity'. Please explain.
Posted by Boo  on  Wed Mar 30, 2005  at  09:18 AM
if anyone needs to get hold of me (excluding rod- unless you want to be nice)
globalsoftware*********
or you can find me through customer svc at Global Software.
Posted by helper  on  Wed Mar 30, 2005  at  09:24 AM
Rod... I will say, though, that I am a big fan of Steve Martin and Theodoric of York (who I've quoted myself on may occasions) and his 'bloodlettings'......so maybe we're not so far off afterall. I also know about all the "kids" books written by/on drug influence (Wiz of OZ-poppy fields-, Alice, the Golden Hare, etc...)Has anyone read Shirlock Holmes "the 10% solution"? 10% solution was the mixture percentage of cocaine he injected. It's no wonder he was such a good detective! I'll bet not a single meaningless clue slipped by him!lol ...and Dr. Jekyl sounds like a friend of mine. Tinctures? Absynth? Ahhh yes...those were the days. In those days, babys were given morphine "baby drops" to 'quiet' and 'sooth' the toddler.......lucky babies.
Posted by helper  on  Wed Mar 30, 2005  at  09:36 AM
sorry. i thought this was a forum for people with morgellons or odd skin conditions. I just took offense to his cold reaction when many people are looking for help with this condition and "Rod" made it look like 'losing $35' was a reason to avoid my advice.
As far as me being a 'spammer".How would i be spamming by registering under my company name (global software) and posting something about medicine? We sell software...not medicine. And I got my product from an obscure lab i found during my year long research. I simply forgot their email address and url. i can tell this place isni't much for helping folks. lol
I found this forum checking on the updated research on morgellons and accompanying "black speck" condition. I t hought I saw some intelligent conversation about the sibject but maybe I was wrong.
Posted by helper  on  Wed Mar 30, 2005  at  09:48 AM
Rod... I will say, though, that I am a big fan of Steve Martin and Theodoric of York (who I've quoted myself on may occasions) and his 'bloodlettings'......so maybe we're not so far off afterall. I also know about all the "kids" books written by/on drug influence (Wiz of OZ-poppy fields-, Alice, the Golden Hare, etc...)Has anyone read Shirlock Holmes "the 10% solution"? 10% solution was the mixture percentage of cocaine he shot. no wonder he was such a god detective! lol
Posted by helper  on  Wed Mar 30, 2005  at  09:49 AM
Helper, this is a place for helping people avoid getting scammed or hoaxed. It's not a place for helping them get medicine of dubious efficacy.

In fact, you still haven't been able to specify what this mystery medicine is. Why do you insist that they contact you privately? That seems fishy to me.
Posted by The Curator  in  San Diego  on  Wed Mar 30, 2005  at  10:10 AM
I wonder if 'Helper' could be associated with the same 'Global Software' that runs the Global Software International Lottery scam.
http://www.stacken.kth.se/lists/best-forestry/2003-12/msg00001.html

I think I'm going to remove his email address again.
Posted by The Curator  in  San Diego  on  Wed Mar 30, 2005  at  10:17 AM
i can't believe how this has turned out. it seems like I've entered the "paranoia room". I can understand this little more now since I know it's for helping people to "not get scammed". There's nothing wrong with 'not knowing' where I got something. What's fishy about that? My memory is not what it used to be. As for why I placed the note here....I found this place while searching for updates on the condition and thought I could help some people who have been recently been affected. I guess I should have looked into the postings a little more. For that i'm sorry however.... the fact remains that I had the condition very bad and it really messed my life up. I owe it all to an organic powder which contained a small percentage of diatomaceous earth. As for the rest of the contents...i really don't know and at the time truly did not care. I was to the point where i was going to spray RAID all over my body. I'm a regular clean person but not a compulsive cleaner. The way this stuff took over my body in one day and started causing little white granules (fungal colonies), black shiny specks (unknown), fibers and weird hairs, to 'pop' and come out of my skin pores was very terrifying. I started taping them to slides and photographing them to slides. let me know if you'd like to see the images. I came to the conclusion that its definitely a strange bug or fungus/bacteria or a new & imossible life-form made up of both. Microscope images revealed "egglike" clusters (mite eggs?)on hair shafts yet only very minor signs of mites. There are millions of species of bugs- any of which could have mutated over the years into a creature capable of this. there's a documentary about the microscopic life found in your home. Ex...The life on the top of a pencil in your desk drawer, bacterial lifeforms which literally travel in pieces of food found on your kitchen floor. Fiber worm/bugs which attach other fibers onto their back to fend off prey in their microscopic universe. There are universes on cd covers, magazine pages, on the heads of other bugs, on doorknobs and so on. Electron microscopes show mites on top of mites which have predators living on them with bacterias on top of other life....it goes on and on. We don't study that universe as much......so who knows what has evolved? We as a human civilization are only about a hundred years- We know practically nothing of the world....not to mention the microscopic world! Who knows what's going on down there? These diseases, bugs, bacterias, and lifeforms lived in various & remote areas of the earth. Modern travel and development has brought everything together to add to it's rapid evolution. This is no scam...this is very real. As far as what cured my condition? I used a lot of stuff but I only noticed an mprovement when i used the "mystery powder". I've also heard of the lyme disease research/treatment and how it has helped this type of patient. What the hell is it? i still want to know!
Posted by helper  on  Wed Mar 30, 2005  at  11:15 AM
Ahh, where to start, where to start.

The following are not quotes, but just lay out the form of "helper"'s argument...

"But it's just $35!. Let people spend it if they want!"
"I bought all new clothes to try to get rid of a skin disease."
"You've ruined peoples lives by telling them this may be a scam."
"Now I'm questioning you as to what you believe in, as I've already read everything that you wrote, but seemed to have missed that part"

"Uh, oh, I just had a thought... maybe you do indeed do research and generally have a clue what you're talking about, and can defend yourself. I'd better buddy up to you by trying to identify with you so you don't do this to me, because if you look for my company, you'll find one with the same name that's been involved in fraud."

"I thought that there was an intelligent discussion going on here. I read it all and posted anyway but only realized that you people were all stupid when you started to disagree with me. But I honestly read the whole thing before I posted in the first place, and only you pointing out possible fraud makes me think you are unintelligent."
"How can I be spamming? All I'm doing is giving out info on something that it looks like I'm trying to sell. Totally innocent, be I."

😕

Now, helper, before you bother to reply, understand that your rants are ways to easily destroy any shred of credibility that you have left. You've already destroyed most of it yourself.

In the future though, if you continue to post, I'll just help you out a little.
Or a lot, depending on how I feel at the moment.
Posted by Rod  on  Wed Mar 30, 2005  at  11:31 AM
I have not read the last post of helper's right above my last post. It was published as I was typing, so it's not included in the progression.

I won't bother to tear it down unless he replies to my last post and continues to show his intelligence level.
Posted by Rod  on  Wed Mar 30, 2005  at  11:34 AM
Lottery scam? What the hell? i think you guys are a little paranoid! Is this the crack smoking room?

uh oh...."he said "hell"...... He MUST be the devil!!!!! he said "crack"! he must be a crackhead! Wait...maybe he's the DEA posing as a crackhead to catch us.....wait a minute....he said "us!!!!!!! oh my god....Is he us?

I'm outta' here!
Peace
Posted by helper  on  Wed Mar 30, 2005  at  11:51 AM
:lol: OMG...ROFLOL... :lol:

Calm yourselves children!
I leave the room for one minute and you act up something awful. Shame on you!

Now, I'm am NOT a paranoid person. I know how to set up an email address to receive "SUSPICIOUS" email. Not that I DO think it "suspicious". I would like to know about this powder before my mother LOSES HER NOSE!!! 😖



I still think Rod is an awesome person despite what ALL of you say! 😡


He just needs guidance and direction...he is one of the few people I know that would be one of the smartest people I know except that maybe he IS too educated.
But, that's a good thing, right???

I am proud to see the CDC is at least recognizing Morgellons now and telling folks to seek treatment with their doctor.
I'm glad you posted that.

My mom's dropped in...
later
😡
Posted by jaleenasmom  on  Wed Mar 30, 2005  at  04:23 PM
This site is about hoaxes or scams?

WHICH???
Posted by jaleenasmom  on  Wed Mar 30, 2005  at  04:24 PM
"I'm outta' here!
Peace"

Wise decision, helper.
Posted by Rod  on  Wed Mar 30, 2005  at  05:54 PM
jaleenasmom, don't you think that if "helper" was on the level and had read through all of this thread, as he said, that he would have gone to the morgellons.org website and tried to offer his help there?

He knows (if he read the thread, like he claims) that the site exists and that it is a gathering point for morgellons sufferers.

And, as Bartles and Jaymes used to say "...and we thank you for your support."
😉
Posted by Rod  on  Wed Mar 30, 2005  at  06:30 PM
🐛 Duh on me! The logic you have used there my dear Rod is absolutely undeniable! If anyone found something that had actually worked, they would be shouting it from the rooftops!!!!
If a doctor saves your life, you never forget his name...if a powder does...you know what I mean.

I did, however, find his "paranoia" outburst hilarious!

""uh oh...."he said "hell"...... He MUST be the devil!!!!! he said "crack"! he must be a crackhead! Wait...maybe he's the DEA posing as a crackhead to catch us.....wait a minute....he said "us!!!!!!! oh my god....Is he us?""


Little does he know I was married to a Narcissitic and Paranoid man, which I nearly let take my sanity. He threatened to kill me if I ever left him, and then the next week he gave me the boot; the next morning he was begging me not to go, but I had to! He agreed to go 1 time to a marriage counselor and I thought she was going to choke him in the first 15 minutes!
Live and learn...

From what I understand, Ted Bundy, and Scott Peterson are narcissitics too.

OMG!!! Are you keeping up with the Terri Schiavo case???
I am SICK SICK SICK about it. Too much conflicting testimony to put an innocent person to death! I think it's murder. I am appalled by what this country's judicial system has come to.
If this woman were lying there just looking at the ceiling and nothing else, it would be different. A tape of her saying "yeah" was played on Fox News tonight. It was quiet obivious she was conversing with her father.
These people just want to take care of their daughter; her hubby just wants her gone.
I believe that if someone does not want to be kept artificially alive and there is a will that states such, then by all means carry through with their wishes. If not, it better be emperical proof, as you always say, that they will never recover and that they are indeed brain dead.
This woman is not brain dead. I have seen brain dead many times.
She is not.
I have had to make that decision in my life. Whether to "pull the plug" or not. But in my case there was no feeding tube. There was ventilator and means, such as drugs to keep the blood pressure up, and her heart pumping. She WASN'T there. No response. Never did she open her eyes again. Terri has no machines...just food and water through a tube...we all need food and water to sustain life...not everyone needs help breathing and keeping their heart going.


By the way, Victoria, the lady posting with us earlier and got fed up with you sent me an email saying that when her doctor's lab COULD NOT identify what kind of bateria was infecting her skin, they forwarded the samples, etc. to the National Institute of Health (NIH) and some lab in the Army.

BOOM! NIH is now involved. Can the CDC be far behind???

I loved Bartles and Jaymes commercials. Wonder what happened to them???
Posted by jaleenasmom  on  Wed Mar 30, 2005  at  10:16 PM
Doctor Jaleenasmom: I need to know a great favor. If you do this for me, Raoul The Loyal One, I shall be forever in your debt, and all that I have is yours. Please answer my dire question: Is the angle of incidence truly equal to the angle of reflection? Also, I have had a problem with applying too much torque in certain positions. I tend to overcompensate for partners with less stamina than myself, and I wear them out frequently. Any suggestions? Rrrrraoul
Posted by Raoul  on  Wed Mar 30, 2005  at  10:28 PM
Rrrrrraaaaaoooooouuuuuuullllllllll...
😛
OH! My loyal one who shall be forever in my debt!
I will not require of thee thy worldly possesions.
T'would be a cruel thing to take all a man has worked for in my kingdom!

The Law of Reflection is one of the simplest rules in our science.
It states that when an object bounces off a flat surface, the angle it at which it hits the surface will be equal to the angle at which it bounces away!

The angle at which the object hits the flat surface is called the angle of incidence.

The angle at which it rebounds from the flat surface is called the angle of reflection.

Under ideal conditions, the angle of incidence always equals the angle of reflection!

My dear jester, the "ideal conditions" first has to be determined in what state you are wherewith.

Too much torque in certain positions will create a detriment for your "ideal conditions", therefore, the angle of incidence MAY NOT equal the angle of reflection! This is simply demonstrated with a game of pool.
I think your "overcompensation" for your partners is your urgent need to be fulfilled and desperation sets in. This would wear anyone out who does not understand the angle of I can be equal to the angle of R.

To answer your dire question; no, not always as conditions change with different angels of I, which may not be an "ideal condition".

I wouldn't worry with wearing out my partners if I were you. Partners come and go, but the Law of Reflection will always be with you!

Go in peace and be happy! I only require of thee thy firstborn...
Posted by jaleenasmom  on  Thu Mar 31, 2005  at  10:58 PM
Ha! That's good.
Posted by Rod  on  Thu Mar 31, 2005  at  11:18 PM
:ahhh:
Posted by jaleenasmom  on  Fri Apr 01, 2005  at  10:06 PM
:gulp:
Posted by Hairy Houdini  on  Fri Apr 01, 2005  at  10:12 PM
I know I said I was not going to post here anymore, but I feel it is significant to report what happened when I went to the Lyme Specialist for the first time on 3/31/05.

I saw one of the nurse practioners. She spent about an hour asking me all kinds of questions about my symptoms, etc. I backed all the way up to two years ago when I first began to show some of the very first symptoms of Lyme Disease. (Although I did not even have a clue what Lyme Disease was back then. I started with a rash behind my ear that would not clear up. Then the flash of lights behind my eyes and then the awful
migraines and then the frustrating floaters that followed. I showed her all past medical records that documented all the different symptoms as they occured, including the vertigo, muscle twitches in limbs, face, especially under my left eye, sometimes the right one too.)Anyway, the list goes on and on, then we came to the skin lesions, itching, crawling stinging sensations, etc. I mentioned finding the fibers all over my house, especially in my bathroom and on my body.
She also examined my lesions.
She then told me that there was a rare, but newly emerging disease that was being called Morgellons!!!!
I told her I was VERY familiar with Morgellons and then went on to tell her about discovering the video showing pictures of people out in California who had sores that looked just like mine and who were suffering from the same symptoms!
She said, "Well, the research into this is all new, but supposedly the disease has been around for a long time, (like back into the 1600's I said and she nodded her head "Yes.") The she said, "AND ALL OF THIS HAS VALIDITY!" She also went on the tell me that none of what I was telling her was OUTLANDISH and that I was NOT CRAZY or DELUSIONAL! I was estatic to hear those words! She said she has a good friend in Texas who is a practitioner who is treating patients with the same symptoms.
She also went on to say she would be very surprised if I tested negative for Lyme and she ordered a barage of tests for Lyme, Lupus, thyroid, Babesiosis, Bartonella, Erlichiosis, etc. on and on! They took about 21 vials of blood!
So now I wait for 6 weeks for all of the results.
To all of you other "Morgellons" sufferers out there...OUR DAY IS COMING, when we will be able to hold our heads high and no longer feel reluctant to go to a doctor, ashamed because someone has labeled us "DELUSIONAL" and be able to get properly diagnosed and properly treated!
(Can anyone give me an AMEN!!!!!!!!!!!!!!!!!!!!!)
Posted by Victoria Moore  on  Sat Apr 02, 2005  at  08:58 AM
Denial is cowardice.

Morgellons 'is as real as a heart attack' and every other major organ failure. Because, that is what can occur in Morgellons' sufferers. The parasitic organism permeates the entire body.

By denying it as unreal, you are propagating it to untold numbers of people.

What would you, other than contracting it yourself, accept as proof of this heinous disease?
Posted by Prudent  on  Sun Apr 03, 2005  at  01:35 PM
Absolutely, Prudent. I truly do not wish this disease on anyone, but to the doubters and skeptics about the validity of this thing being called Morgellons, that might be what it takes to have a reality check.
Progress is being made though for some answers.
Posted by Victoria Moore  on  Sun Apr 03, 2005  at  01:44 PM
:coolsmile:
PRUDENT!!!

Where did you come from???

Lyme disease...Morgellons...Lyme...Morgellons...

I see a pattern...
Posted by jaleenasmom  on  Sun Apr 03, 2005  at  06:13 PM
Jaleenasmom...I saw this site listed on my new Netscape browser. It's insulting to see this disease being touted as a hoax. Esp. since it's killing me.
Posted by Prudent  on  Sun Apr 03, 2005  at  07:29 PM
:gulp:
Tell me more...killing you???

My mom's extremely uncomfortable with this stuff. So far I don't have any lesions, etc.

What's your symptoms? What's your doc say?
Posted by jaleenasmom  on  Sun Apr 03, 2005  at  09:53 PM
New Morgellons article. Well, April 2nd, anyway.

No new info in it, though, except that someone apparently believes it's an alien infection from meteorites from Mars.

The rest is nothing new.
Posted by Rod  on  Tue Apr 12, 2005  at  03:15 PM
Actually, there is quite a bit that is new about Morgellons.
Posted by Victoria Moore  on  Tue Apr 12, 2005  at  07:07 PM
If you read my post, it says that there is nothing new IN THE ARTICLE.

As for there being more new stuff on Morgellons, would you care to elucidate?
Posted by Rod  on  Tue Apr 12, 2005  at  07:42 PM
This for starters:

http://64.26.27.65/video/expanded.asp?ID=1844
Posted by Victoria Moore  on  Tue Apr 12, 2005  at  08:54 PM
Okay,

1.) If all of the problem starts with french spring water, how come this is not a rampant disease in France, and, indeed, not all of Europe?

2.) People with AIDS and cancer are the ones affected, according to the doctor. Do whole families have undiagnosed cases of AIDS or cancer?

3.) Doctors say you shouldn't stop drinking bottled water? Why is this, if that's where it's from?
Posted by Rod  on  Tue Apr 12, 2005  at  09:11 PM
The Morgellons website has been updated, check it out.

http://www.morgellons.org
Posted by Paula  on  Wed Apr 13, 2005  at  05:46 AM
another good site on Morgellons

http://cherokeechas.com/
Posted by Paula  on  Wed Apr 13, 2005  at  05:51 AM
#1 - They are not sure why the French people are not being affected and are looking into it I believe. One theory is that their immunity might be built up and are not affected by it...and how sure are we that there are not some cases of Morgellons in France? I would like more research done in that regard.
#2 - The doctor was saying that people with AIDS and cancer have compromised immune systems and would be the most likely to contract a pathogenic illness. He was not excluding other reasons. There are entire families becoming ill from Morgellons that do not have AIDS or cancer, but many DO have Lyme Disease. I have a feeling the news broadcast perhaps edited out part of what he said.
#3 - The point the reporter was trying to make I think, is that if you have a healthy immune system, you need not be alarmed. (WELL - I THOUGHT I had a healthy immune system...until I got this!) I think they don't want to have widespread panic over drinking bottled waters, again...UNTIL MORE RESEARCH is done. (Hence, the need for donations to be made, so that the research CAN be done.) They could set themselves up for lawsuits I would think, if they are not sure the bottled waters in the US are not safe to drink as well. Keep in mind, Dr. Schwartz said (on the radiobroadcast made on 3/15/05 on RPN)he thought the bacteria may also be in community water supplies (which could explain the "pockets" of certain cities getting this.) (BUT HOW IN THE HELL DID I GET IT??????) I am STILL waiting for the analysis of my well water from the NC Dept. of Environmental Health - knowing their are two different bacteria there, but not knowing WHAT they are!
Hopefully, this answered some of your questions, although I am no authority on any of this. I am just wanting some answers as to how I got this and how to get rid of it!
Posted by Victoria Moore  on  Wed Apr 13, 2005  at  07:18 AM
Oops! I meant to say RBN (Republic Broadcasting Network) and the radio broadcast there is excellent. The link is:
http://mp3.rbnlive.com/Stadt05.html
SCROLL DOWN to March 15, 2005 show. You have to click on the 1hr (1st hour) and then 2hr (2nd hour) to hear both segments of the show.
Posted by Victoria Moore  on  Wed Apr 13, 2005  at  07:34 AM
Here's proof of this Not being dillusionary and shows how quickly its spreading. Ive had it 3 years and aquired it in a hotel in south san francisco and believe bed bugs were the vector. Now go to this site

http://www.e-bug.net/forum/index.shtml This is an exterminators web site question answer forum. go back in its archives to mid 2002 and scan all posts from then till the present and look for: whats biting me. small black biting bug. mystery bites. someone help please. fuzzy, fibers. etc etc etc.


I dont know of any clearer way to prove this is not a dillusion. to many people with the exact same story. its been spreading slowly but is really starting to pick up speed now. And if you still dont believe it... C'mon over here and give me a hug..
Posted by youWantProof  on  Sun Apr 17, 2005  at  06:21 AM
I went to doctors who said I was delusional. I learned to take care of myself. Vinegar rub downs help. Frequent bathing and washing of clothin helps. B2 Vitamine helps. MSM helps. Cilantro helps.

Cheese, Sugar, sweets, refined carbohydrates make it worse.

Hypothyroid makes it worse. Iodine makes it better, coconut oil makes it better.

There is none so deaf as those who will not hear.
Posted by jane mccloskey  on  Wed Apr 20, 2005  at  07:17 PM
Jane,
I think many of us have had to take matters into our own hands to seek some sort of relief from the symptoms of this madness. However, I do hope that the research being done now will soon be able to enlighten the doctors who have dismissed these symptoms as delusional and begin to give their patients the proper treatments they deserve. I will keep you in my prayers and pray that you will get the chance to get treatment that will CURE this, not just give temporary relief! I selfishly want that for myself as well.
Posted by Victoria Moore  on  Wed Apr 20, 2005  at  08:47 PM
:coolgrin: ...Honey...I'm home!

Hellooooooo ROD!!! and everyone else.

1.) If all of the problem starts with french spring water, how come this is not a rampant

disease in France, and, indeed, not all of Europe?

First and foremost, I don't think everyone in Europe, France, has their immuno-system

repressed from some illness.
Even though it's not in a "paper" in the AMA yet, it is a proven fact that people who have

Morgellons Disease are immuno-compromised and yes, there is emperical proof from

research about this, but like I said, no paper yet. For example, cancer, AIDS, Lyme

Disease, Erchilosis, Babesiosis, however, there is no answer as to WHY AND HOW it

is only attacking these people.
I don't believe saying it is in "spring water" from France is exactly accurate.
It is in 1/3 of the bottled waters imported from France, not neccesarily "spring water". 😛

2.) People with AIDS and cancer are the ones affected, according to the doctor. Do

whole families have undiagnosed cases of AIDS or cancer?

:blank: Let's be sensible...of course entire families are not undiagnosed with AIDS or Cancer,

however, entire families ARE being diagnosed with CHRONIC LYME DISEASE. This is

a condition in which a person has had Lyme disease over a period of years.
Did you know new research EMPERICALLY proves that Lyme disease can be

transmitted sexually??? Go in search for the truth...look up syhpillis and sphirochetes.:blank:
I have personally spoken with an entire family who has had this happen to them...only

ONE had Morgellons. Why??? Nobody knows...any thoughts???

3.) Doctors say you shouldn't stop drinking bottled water? Why is this, if that's where

it's from?

I TOTALLY agree with you on this one!!! Stop drinking it and now!!! My mom has

drank ONLY bottled water for about 3 years now, thinking that it would "be better for

her". Wow! This is the only source, and I mean ONLY source, that we and her doctor,

who is now a Morgellon's believer by the way, can come up. No other source, so far,

has given rise to believe otherwise. Any thoughts??? We have worn out our "thinkers"

on this subject of her Morgellons Disease. How else could she have become

contaminated???

And boy, oh, boy!!! She was sent back to the same derm for a third time last week.

That's 3 trips in 2 weeks and man, is her doc getting P.O.'d! She (the doc) doesn't

understand why in this world this man (the derm) keeps telling my mother that the only

thing wrong with her is Rosciesa (don't know if I spelled that right)! She has HOLES in

her face, neck, chest, AND arms for crying out loud! Now her doc is really P.O.'d!
(Keep in mind that my mother is also a diabetic type 2 and has high blood pressure

which she takes 3 meds to control.)
Posted by jaleenasmom  on  Thu Apr 21, 2005  at  01:06 PM
e prescribed her RISPERDAL - "Common Uses: This medicine is an antipsychotic

agent used to treat emotional and mood disorders. Inform your doctor of any other

medical conditions including heart disease (heart failure, history of heart attacks or

ischemia, conduction problems), diabetes, strokes (cerebrovascular disease),

dehydration (too little body water), seizures, dementia, swallowing problems, allergies,

pregnancy, or breast-feeding. THIS MEDICINE MAY INCREASE YOUR RISK OF

DEVELOPING DIABETES OR CAUSE HYPERGLYCEMIA (high blood sugar),

sometimes severe. Caution is advised when using this medicine in the elderly because

they may be more sensitive to the effects of this medicine."
Knowing she has these 2 conditions, and unwilling to put specimins on a slide, he gave

her this medication. :blank: :blank: :blank: :blank: :blank: :blank: :blank: :blank:

:blank: :blank:
I was out of town.
She called her sister the evening of the doctor visit to ask her to look this med up

because she was having all sorts of side effects.
She gave her the above info and my mom immediately called her pharmacist who told

her that the doctor (this brilliant...NOT...dermatologist), told him NOT to tell her what it

was for! Uhhhhhh...can we say malpractice 3 times fast?!
So she calls this dude and started giving him a raking because he KNOWS her

medical conditions, as well as all the meds she takes and he still gave this junk to her.

Can you believe at that point he started BEGGING her to take the medication???????
She told him all the crazy side-effects she was having and he told her to "take it,

please! Please, just take it!" She asked him if HE was nuts?

He said, and this is REALLY interesting, actually THE BEST PART OF THIS WHOLE

STORY...

"This medication is what I give everybody who comes to me bringing me stuff like this

with these symptoms."
:blank: :blank: :blank: :blank: :blank: :blank: :blank: :blank: :blank: :blank: :blank:

:blank:

What a shock to my mother's ears, huh? Everybody??? How many is Everybody???
2, 4, 10, 20, 100???? He is the only derm within an 80 mile radius of where we live.
Ah! You say he may have been making that up just to get her to take the medicine?
Oh, contrare, monfreir! I have a cousin who works in another county who says they

send patients to him with symptoms like that too. She said they send him SEVERAL.

Well, at least he admits it is not Rosceicia (?) anymore. Now the cat is out of the

proverbial bag and he can't put it back in! So, my mom proceeds to jump at this

chance and tell this @#^&*>)$@, that I have contacted a major television station in

another state, but close to us, she actually told him which one...I don't tell that info here.

Someone may wind up dead...
And that they are going to do a story just as soon as they get their May sweeps done,

which shouldn't be long.
Posted by jaleenasmom  on  Thu Apr 21, 2005  at  01:11 PM
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