Sufferers of Morgellons disease complain of invisible parasites biting their skin. And they get skin lesions from which sprout strange fibers. And mysterious black spore-like specks appear on their skin. Cases of this strange disease seem to be spreading, especially in the Bay area. One theory is that it has something to do with Lyme disease. Or it may be a case of mass delusion. The medical community seems to think it's mass delusion. Most people who show up complaining of these symptoms get diagnosed with 'delusional parasitosis', which is a psychological problem in which people imagine that they're infested by parasites. Not having any medical qualifications at all, I won't weigh in on whether this is a real disease or mass delusion, but some of the behavior of the patients does sound suspiciously bizarre. Take the case of Theresa Blodgett:
Comments
That is just fluff though... I have been afflicted with this thing for at least 5 years now- but only aware it was a parasite for 1 year. In that year I have methodically tried many different treatments, some working better than others. I have retried treatments that didn't work the 1st time and had better results (and vice versa). My personal instinct and feeling is that this thing is CYCLICAL! Figuring out what the cycle is would have to take place in a lab... Just when I think it is a monthly cycle (or whatever) the pattern changes... Probably because I somehow become reinfested with worms at a different stage...
This is my first posting and I have some specific intrests to pursue and am very willing to share what I have learned.
Foremost I am concerned because my 11mo old granddaughter lives with me and I have seen fibers on her. She has had a few seizures that are under control on phenolbarbitol. I have heard Morgellons correlated with autism and ADHD in children. Anyone out there with kid experience?
I will end this missive with the following advice:
Trust your instinct about how YOU treat this (regarding medication, herbs, personal and environmental hygeine, etc.) Read up on and aim to strengthen your immune system... the ultimate cure for all!!
I would encourage all to register on the Morgellons site. You will only receive informational emails -NO SPAM !- As far as I can tell they are the center of all that is Morgellon and definitely the most active toward finding some answers, if not a cure!! Especially if you live in a cluster state (CA, GA, or NY)! 😝
Unfortunately for the sufferers, "morgellons" is more concerned with self-serving politics and greed, than they are with actually helping any of you people.
All "morgellons" is here for is a distraction, and to offer you a false sense of hope that something positive will actually happen through them.
Someday the truth will come out and hopefully the people involved will be held accountable for prolonging the suffering and impeding any legitimate scientific progress.
I guarantee you that in one year's time the "morgellons" foundation will still have all of up the river without a paddle.
If you are actually interested in finding out what is really bugging you then here you go:
http://www.headlice.org/news/2005/august/tiny_bugs_wreak_havoc.htm
I am also more inclined to believe and information site not linked to advertising!!
I'm glad you believe,
I actually do know a thing or two about morgellons, having been a registrant a few years back, I don't know where you get your ideas from -hmm,i wonder, but if you knew anything you'd know the symptoms are the same. I also have had collembola identified in my skin scrapings and am now being treated for that. and guess what, my symptoms have subsided and lesions almost all gone. So yes this morgellons disease is collembola. Of course people may have varying degrees of symptoms but it is all the same condition, if it wasn't then nobody would have recieved the delusional diagnosis.
I'm not sure what you are talking about when you mention advertising, but I have seen ad's at Lymebusters, so maybe that's what you are talking about.
Anyways, I wish people like you would stop spreading misinformation, it does nothing to further the cause, and does not bring you any closer to any kind of medical help.
"of and on blue or red feet
and tooth starting to "crisp"
Are this getting familiar symptoms of Morgellons too.
every other symptom is familiar
pleaSE FILL ME IN.
aREND TER HORST Amsterdam
If you are suffering from this problem, please call their toll free phone at 1-866-314-8917. Their trained specialists have patient with your problem.
The trditional use of 5% Permethrin (Elimite) to treat scabies or head lice has never worked for this type of skin infection.
don't bother ordering from these idiots unless you are looking to ruin your eyesight.
The NPA is a godsend and they should be commended for all their efforts in trying to bring this skin disease to the attention of the medical and scientific communities, I wish more sufferers would support them.
Dr. Schwartz
"As for the nurse who says that just because so many people claim it that it must be true." That nurse you are talking about happens to be a world renowned Lyme Disease specialist, who has had patients come in from tons of different countries. She is a Nurse Practioner, and won the Nurse Practioner of the year award in 2004. She speaks at Lyme conferences all the time, because they realize that she is one of a few hundred people who fully understand Lyme Disease. She is a genius and with her knowledge alone, she could beat almost any doctor's practice around in Texas.
Her name is Ginger Savely, and she was the one who was interviewed by about 10 different news stations in Texas and in a recent article in Popular mechanics, all having to do with Morgellons.
She saved my life, and she was the only one who didn't treat me like a leper, like the first doctor who saw me in the ER when I got it. She actually, "GOSH," examined me unlike the two previous doctors before her, since she actually understood that a natural response in her situation would be to at least see if I didn't have DOP. She looked at my legs, which were covered by lesions, and oozing puss. And then she got out a 10x magnifiying glass, which is all you need in order to see the psychical manifestations of Morgellons. Well actually you can see them with the naked eye coming out of your skin in little black and white specks that look like cotton, but the magnifiying glass let's you see that those little specks aren't just dirt or dust. Not to mention that they were coming out of my skin, which she and her nurse witnessed. When she examined them, she saw the parasites, and since she had treated so many cases, it was a very easy diagnoses since my symptoms aren't in the medical books, yet. I was diagnosed with Morgellons Disease. It took her a total of about 8 minutes to do that. Then she took my blood, to have it tested for Lyme Disease, and what do you know? It came back positive.
Yes, it's in my medical records if you want some copies. Morgellon's Disease in fine print. Not to mention that I submitted these medical documents to my government, in order to obtain SSI because i'm currently disabled from this disease. They approved my application.
That's why i'm picturing you as a non-human entity, just regurgitating your constant idea that everything in life is explainable, and that our scientific "theories" are the ultimate truth in the world, except for the ongoing scientific process of new discovery and research. Hey, i'm probably wrong about you, but in the subjective reality that is forming around my 1's and 0's, the "fact" is that I have this disease and the "fact" is the CDC has been investigating it, and it will become another known disease soon enough. We'll of dismissed each other by then, and our subconsiouness might retain just a bit of the memory of these words.
Basically, I am a moral and ethical person, who would most likely never resort to violence unless it was in self defense. But if you
say one more spiteful word about Ginger Savely, I will excersize extreme physical force on your body... enough to make you feel a
0.000001% of the pain I deal with everyday, but that's of course if you have a body, heh. Can you prove to me that you exist? Come on
i'll play your game and i'll manage to do the same thing you did, committ an atrocious amount of ignorance by completely unhealthy
skeptical design. But I am serious, because she has saved me from taking my own life, and she could crush your ignorance in one fell
swoop of rhetoric, if you had the guts to actually call her. Are we clear here?
diagnosed with a physical disease.
There, now that I told you that, how about you listen to how the first doctor, when I got Morgellons Disease, treated me in the ER,
He talked to me for a total of 3 minutes, refused to even examine my huge lesions on my legs(Delusional Parasotitis is supposed to be the
last conclusion to investigation of someones complaints of physical maladays, not the first) and he didn't even take my vitals and walked
out. I was told to leave, and he never mentioned anything. I had been diagnosed as Delusional Parasotitis by this so called "reputable"
doctor because his ego, and his belief that he was excellently versed in the alimighty book of the DSM. But of course he failed to do
anything right in his treatment of me, and it was a clear case of negligance. He didn't mention, "oh maybe you could be seeing things,"
or examine me, or recommend me a psychiatrist, or bother to have the balls to actually do his job. In all the medical journals about
DOP, it always says to at least examine the patients concern, just in case they have scabies or some kind of ailment and then, if they
don't, ease them into positive thinking about the fact that they're most likely seeing things, and recommend a psychiatrist.
These are the doctors that Morgellons sufferers deal with. They're on par with you, as far as skeptisicsm is concerned. And you wonder
why this disease hasn't been recognized as a "true" medical disease. We're awash in a medical community of people like you, and it's
only the doctors who show compassion for their patients that recognize something weird is happening in their bodies, and it's not in
their minds.
Oh and also. since my NP studied this disease all her life, she and all of the other hundreds of doctors who are proficient in Lyme
Disease treatment are trying to urge the CDC and medical community to stop with the misinformation that is currently widespread. Doctors
think it's a rare disease. It's an epidemic in America now, and it has many vectors, not just the infamous ticks that only leave
bulls-eye rashes about 10% of the time. , and from her research she has told me that 75% percent of what the CDC information on Lyme
Disease is completely false. I myself, believe her, espesically after constant research... I mean does anyone honestly think that a
chronic lyme patient can be cured by a 30 day antibiotic treatment that the CDC claims? The Lyme Doctors I mentioned are willing to give
anyone $50,000 if they can show that they cured a chronic sufferer with the CDC's bonfied treatment.
Oh yah, but that offer has been there for about 6-7 years now, with these Lyme doctors completely promoting it all the time to the CDC
and to any healthcare worker.
http://www.rense.com/general69/lyme.htm
http://www.msnbc.msn.com/id/10039154/
Anyway, i'll get back to Morgellons.
Dr. Scwhartz which has been mentioned here, has recently, from research of his Morgellon patients, proposed the theory that this disease
is some kind of disease that possibly is a combination of Schistosomiasis and S MALTOPHILIA.
http://www.path.cam.ac.uk/~schisto/Background/General.Pathology.html
http://www.engin.umich.edu/dept/cee/research/HSRC/index.html
http://www.nhm.ac.uk/hosted_sites/schisto/prcschisto/abst/abst37.html
http://www.ingentaconnect.com/content/cabi/joh/2002/00000076/00000002/art00007
There's some info for you to blow off.
Oh and now we have the disease of Morgellons classified on a governmental healthcare website:
http://www.healthfinder.gov/orgs/HR3704.htm
Yah, healthfinder.gov that sure sounds like one of those crazy conspiracy sites doesn't it? Oh wait, no, it's actually a very serious
health website that is being maintained by our government to inform people about all kinds of things, like novel diseases that actually
CAN become a reality in this world.
The fact is, I know you'll just slip right around all of these things i've shown to you, and claim healthy skepticism. If I was a
psychiatrist, I would classify you as having Borderline Personality Disorder, a little bit of Narcissitic tendicies, and an all around
seriously lonely and afraid lost soul, who uses all sorts of seriously awful psychological schemas of self-defense mechanisms that he's
built up throughout his life. And he can't let himself know about his self-defense mechanisms, because without them he would feel dead,
mentally and spiritually. And the most natural and serious ability of living things, is self survival.
Go ahead and wind up like one of those doctors i've talked about, but when you are finally alone and realize you're in a black abyss of
despair, you'll be screaming out into the world because you'll realize your life is a very empty one, and there will be no one to comfort
you.
now I don't experience any more, because i've learned the lessons of morality, ethics, compassion for everyone, and a spiritual
awakening. I hope you'll find those qualities too, but not from a godawful disease like Morgellons, a disease that you are continuning
to perpuate and frame into your own twisted reality.
No hard feelings, I don't hate you or have any negative feelings towards you. If you perceive that from my message, then you're just
mistaking the whole message for something it's not. I'm not out to try and provoke you, humiliate you, or anger you... i'm just trying
to help you understand that the path your leading now in your life, in my opinion, is a path that will further you away from all comfort
and solace. And will leave you a soul-less wreck. I don't want that to happen to you, I want you to have a happy life.
Travis
Dr. George R Schwartz newly published a book decribing MORGELLONS. If you are interested, please view his website at
http://www.healingresearch.org/new.html
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new book!!
Lisa's Disease, Fiber Disease, Also known as Morgellon's disease: Origins, staging, clinical course, treatment, case histories, decontamination of house--much more !!!
Due to the overwhelming demand for reliable information, we have published the first edition of our book. For physicians and patients, we present everything that is known about this strange new epidemic. THIS is the only AUTHORITATIVE SOURCE. Send $24.95 to: P.O. Box # 991 Elephant Butte, New Mexico 87935
--------------------------------------
http://www.healingresearch.org/
Quoted from Randy's experience in curing "BUGS" as follows,
FLAGYL 400mg (METRONIDAZOLE) is a good choice for treating "BUGS", as quoted as follows,
1. To treat eyes:
Bausch & Laum Sulfacetamide drops ?3 drops 3x per day, one more time at bedtime. Feels like it burns, but it does work.
2. Use mud packs purchased from DermaTechRx 2x per day
3. Bath with Sulphur soap with lanolin
4. Always use Borax in laundry
5. All carpets should be removed ?Check with your insurance company, they may pay to replace your carpets.
6. All Cloth Furniture should be removed ?Check with your insurance company, they may pay to replace your furniture.
7. Note that it may get worse before it gets better.
8. A high protein diet is highly recommended. Example?Adkins Diet. Products that contain yeast and bacteria such as breads and cheeses can make your condition worse.
9. Sprinkle Diatomaceous Earth on your carpets, rugs, and your car and rub it in the carpets
10. Below are a couple of products to treat for internal parasites. It is highly recommended that you do this as the parasites appear to enter body cavities also.
21 day Anti-Para Parasite Cleanse* (90 capsules)
A gentle all-natural herbal parasite cleanse that promotes the expulsion of intestinal parasites from the body.* $19.95 US
Along with the antibiotics, internal cleansing of parasites as well as external cleaning needs to be done with our DermaTechRx products.
GO TO THIS WEBSITE:
http://www.herbalcaredirect.com/AntiPara.html?trkroi_campaign=0625F1D1-8CB9-A333-E41B-1A8099DAF23
Paragone - 2 Part Internal Cleansing System
2-Part Internal Cleansing System Natural Ingredients Traditionally Used to Balance Intestinal Microbes & Candida*
$25.59 US
Also includes a Internal Cleansing System for Children
GO TO THIS WEBSITE:
http://www.herbalcaredirect.com/AntiPara.html?trkroi_campaign=0625F1D1-8CB9-A333-E41B-1A8099DAF23
regards
http://www.be-healthy-forever.com/marc
But I digress.
My mother was getting soooo much better, and now, this has returned with a vengance. It is relentless in it's quest to inhabit her body. I will tell you, she went to lengths of "cauterizing" her open sores herself since no doctor would. THEY HEALED. AND QUICK. I AM NOT SUGGESTING ANYONE DO THIS. I ENCOURAGED HER TO STOP IT. I KNOW THAT SEVERE INFECTIONS COULD ENSUE AND THAT WOULD ONLY MAKE THINGS WORSE. I don't think she could stand to do it again anyway!
I have watched her put "stuff", since we don't know exactly WHAT it is, on a gas stove eye and I have watched this "stuff" start to crawl away and literally jump off the eye away from the fire!
We have found one other person in our city with this.
CONTINUED....
Anyone who does not personally know someone with this will easily dismiss it. SUCH AS ROD. HI ROD!!! :cheese: THIS IS WHY NEWS COVERAGE IS IMPORTANT. Most ppl will listen to what is on the news. At least they are becoming aware.
I wonder about DermaTechRX. I have looked at their products and frankly their prices are OUTRAGEOUS. I KNOW, since I have been making bath and body products for the last year, that this stuff is TOO HIGH. But, then again so is BATH & BODY WORKS. However, I am thinking of ordering a jar of that scrub because if I can get the ingredients list, I can make it myself for about $5 and that includes the jar. I have made something that does help my mother's skin, so I would not completely discount these folks. Diet does help, but can a diet alone actually CURE? That is where I would need "empirical evidence". Even vegans have heart attacks, cancer and strokes.
POST BACK EVERYONE!!!
on a gas stove eye and I have watched this "stuff" start to crawl away and
literally jump off the eye away from the fire!"
Jump-- collembola=springtail
this is what is actually bugging you
http://www.headlice.org/news/2005/august/tiny_bugs_wreak_havoc.htm
...YES...BUT, there also seems to be other "things" involved in this disease.
I see in a post above that apparently other "ickies" could infect the body in this weakened condition.
Consider the FACT that collembola carry and vector numerous bacteria and one fungus--all of which have been documented to cause skin and other problems for humans. one of these bacteria just happens to be wolbachia, which is now known to be the actual cause of human filarial disease. I also suspect in the future, if this disease ever comes to light and is actually studied by the sceintific community, they are going to find that collembola probably also carry the lyme disease bacteria.
Research collembola and you'll find these things out.
It's not science fiction....you just need to think outside the box...but not too far out, because this thing is not some "alien" disease.
Personally, I think she's full of sh*t... but if you have any knowledge or experience in this area, please respond!
Thanks!
There are three sources on the market for the information of curing as follows,
1. Dr. George Schwartz:
http://www.healingresearch.org/new.html
2. Richard's King Diet:
http://www.dstressdoc.com/skin-problems.htm
3. Paul's Protocol:
http://www.be-healthy-forever.com/
It's a disease that the SUPERBUGs Collembola Springtails live on parasites, most of them nematodes, creating fungal environments inside patient's skin. In order to get rid of those bugs, you need to exterminate parasites inside the body.
She needs to have both the blood test for bacteria and parasites and stool test for parasites, preferable at the infectious disease department of the university research hospital. Most of dermatologist and family practitioner doctors do not know how to treat this disease. And, end with a conclusion of
http://skindisease.proboards50.com
Make sure you gargle with Listerine or some other antiseptic mouthwash. The mucous membranes are very important. I found a boat load of these things in my mouth.
Also, spray the area with some type of disinfectant. Do not use too many cloth materials in the house.
http://www.healthfreedomsolutions.com/forums/viewtopic.php?t=60
I am not into pain and do not run to doctors with rug dust. But I am way open to listening to people than you are.
I believe this is some sort of fungus like Aspergillus. This can be breathed in and it can infect skin and eyes. And you all are delusional if you think you cannot get parasites in the U.S. We have mosquitos people!!
Mr.SkinDoc, or (Mr.pimplepopper),
This is what is really going on:
http://www.headlice.org/report/research/index.html
Sorry man, they're not methheads, in a few years it's going to suck to be you.
Anyone can make a "foundation." I'm going to make a "foundation" for "people who know that carpet doesn't come out of your skin."
http://www.headlice.org/report/research/index.html
As for the "fibers", most likely they are just fibers from people clothes that get stuck in the lesions and open wounds caused by the collembola infestation.
Is this a picture of a colembola?
Or any of these?
Or this?
Cause that would be nice, as, after 8 years with this scourge of, literally hundreds of nights of, silent scream dispair, and I tire, of it all.
Tonight I will pray for Skin Docs patients and the further pain he inflicts upon them.
For Shame.
Bryan.
1. kleen free to clean environment and take tub bath. The result is excellent, better than any other products:
http://www.notnicetolice.com/
2. dewormer of http://www.7dmc.com
3. Biltricide 600mg X 2 per day
Albenza 400mg x 2 per day
Vermox 500mg X 2 per day
4. Multivitamins and iron supplements
5. Immune booster
AHCC 1000 mg X 2
ImmunoLin 2500 mg X 5
Immuno-Shield
Taurox PS and Taurox fatique
that's really a question for the experts at identifying collembola in skin scrapings to answer.
That's who you should be asking, especially about this one:
I bet $$ there's a bunch in that one.
You gotta think "small"--way smaller.
Collembola have many life stages or instars.
Our collembola are no larger than a human liver cell in their first instar.
Cerulean,
Thank you for your suggestion, I just may do that, but, to me, that Lil bugger looks like a sea lice... WTH?? It seems I am finding abilities and images that a lot of ocean microorganisms reflect, maybe a place to do more research on possibilities.
The one that intrigues me most(and you know, for an affliction that traumatizes so much, it sure is bloody Fascinating tho eh) is this one.
It is an image that appeared on a viewer I bought (a 'see the little world' childrens science toy) that makes micro macro so I can photo specimens. It was actually on the 'inside' of the screen as I could not wipe it off. But, it was only visible with the screen viewed at a 45 degree angle, and the most interesting part is, when viewed from the other angle (90 degrees away) you see what appears to be its back side...????
Here is a picture of it (and the viewer it is on and, btw, the item on the slide is a dust ball I looked at and inside found little red nematode likes and an encapsulated fly that it seems they were using as a food source)
I agree smaller, waay smaller, basic building blocks of life stuff, strong relationship with hydrogen, oxogen, sulfur, FE(III).... an organism I have sometimes called Hiderogen. So yes, I agree, most all that I identify as related are symptoms only but the common denominator seems achieveable.. hopefully anyway.
😊
My regards,
Bryan.
Also, the postboard/forums have a 'show no advertizing' option button for any to use. They have been a saving grace for myself and, almost daily, for those who find their way there on their own but arrive so distraught that suicide prevention/intervention is often required... but sometimes it does not work.
The posts are, even after 8 months, often a very difficult read. People reaching out for help for themselves or, most often, in concern for their loved ones, have frequently been forcibly institutionalized and had their children taken away being deemed 'unfit' as a parent. I can imagine no greater trauma for a perfectly sane person trying to do what is right. Many are still suffering from that injustice.
Sad that.
Very sad.
- Bryan.
Nuggets of gold in places where one would not neccessarily expect.
My respect and my gratitude, to you, for your spot on info and your understanding.
Best regards,
Bryan.
RE: Symptoms
"Itching and a rash at the site of where skin touched soil or sand is usually the first sign of infection. These symptoms occur when the larvae penetrate the skin. While a light infection may cause no symptoms, heavy infection can cause anemia, abdominal pain, diarrhea, loss of appetite, and weight loss. Heavy, chronic infections can cause stunted growth and mental development."
I have had this unchecked for eight years. Onset was identified during an episode of anyphylactic shock while in La Paz Mexico, no rashes manifested and I, at that time, was in one of the best shapes of my life. I have NEVER, in all the eight years, had abdominal pains, diarrhea, loss of apetite (I eat like a horse) weight loss or stunted growth, the opposite in fact.
Ergo, I don't 'catch on'.
But thank you anyway.
Bryan.