Sufferers of
Morgellons disease complain of invisible parasites biting their skin. And they get skin lesions from which sprout strange fibers. And mysterious black spore-like specks appear on their skin. Cases of this strange disease
seem to be spreading, especially in the Bay area. One theory is that it has something to do with Lyme disease. Or it may be a case of mass delusion. The medical community
seems to think it's mass delusion. Most people who show up complaining of these symptoms get diagnosed with 'delusional parasitosis', which is a psychological problem in which people imagine that they're infested by parasites. Not having any medical qualifications at all, I won't weigh in on whether this is a real disease or mass delusion, but some of the behavior of the patients does sound suspiciously bizarre. Take the case of Theresa Blodgett:
She gathers up the black specks, the mysterious fibers and the small, fuzzy 'cocoons' she finds on her skin and around her home. She tapes the macabre samples to typing paper, but she said no doctor will analyze the collection. Physicians who glance at the specimens dismiss the lot as stray hairs, clothing fibers, scabs and other common household debris, she said.
So either she really is suffering from something and is desperately but unsuccessfully trying to get doctors to pay attention to her, or she's obsessively collecting house dust and stray flecks of dirt and convincing herself that these things are parasites attacking her. (Thanks to 'K' for the links)
Comments
just stop calling it "morgellons"
i hate that name.....nobody told "morgellons" foundation (the MF-ers, haha) that you're not supposed to name a disease before you know what it actually is.
PS its not nematodes
I know it's been sometime since I've posted, but I try to keep up the reading anyway.
Dawna, you are infected?
Paul, you are infected or not?
cerulean (sorry if I spelled that wrong!) are you also infected?
WHERE'S ROD? DID HE DIE????
I missed you! Glad to see you're still here!!!
Dwana, my mom and I went to an Infectious Diseases Doctor.
Her GP and my Internal Med Doc sent us to the same one! She is very well versed in Lyme Disease and is from the Phillipines.
She diagnosed me and my mom with Lyme and mom with Morgellons.
I am not infected...yet. I am hoping that the regimine of antibiotics and a paticular line of product will do the trick for me.
As for my mother, she has been taking Bactrim and Biaxin for over 3 months. Her lesions are gone but she is still finding a few "critters" every now and then.
I forget where I learned about the Bactrim and Biaxin. It was Dr. Harvey from TX I believe, in an article I read somewhere on the net.
I understand that right now, the ideal treatment, if there is such a thing, is Rocephin IV drip 3 days a week for a period of months.
This alone can wreak havoc on your system.
Her "delusion" is being helped by these two anti's. You just have to find a doctor who is "willing" to listen to you, AND get on some kind of GOOD product. Something that will help heal you naturally with vitamins, minerals, proteins, etc. I know nothing of the aforementioned products.
I have tried two different companies products and they are both excellent.
I keep in contact with a lady who posted on here earlier, victoria. She has been taking a particular companies products for about 4 months. She returned to her Lyme Specialist, who also diagnosed her with Morgellons, (yes, that's what name he used), and he was as amazed as was she.
She has been declared and does fully assert that she is Lyme and Morgellons free!
I don't dare tell you that company though! Not here! Someone will swear I am tryig to make a buck even though I don't sell it!
If you would like to know what it is, maybe Alex could email me and I could give him the name of the company and he can send it to you. Likewise for anyone else that reads this. Or, maybe he could check it out and post the link himself.
I don't want to get "booed" off the board for saying "use this, it's a miracle cure"! :roll:
That is one reason I haven't posted my info here - and have been very low key at other sites. I just don't want people to think I am trying to "make a buck" either. All I know is that the stuff you mention helped me get well and I have shared that good news with a few other people in the hope it will do the same thing. I KNOW I needed the antibiotics - but the other helped and is continuing to help my immune system heal - it is allowing my body to heal itself from whatever condition made it "RIPE" for the Lyme and other co-infections. (Including what is being called Morgellons!) It is something I will probably take for the rest of my life. I am just thankful someone took the time to tell me about it and I am thankful you are taking it too!
Funny how delusions can be so painful, huh?
I think at some point, we won't need the anitbiotics anymore!
good,
I have never had any problems except for hearing, and I don't think deafness is a psychological problem well, some may believe that one just doesn't want to hear. Ha Ha...
Anyway, I dont live in these areas mentioned, not even close to them. But, I do experience the symptoms. After the bite feeling a small area like pimple forms, so does anyone have a clue of how to help stop these symptoms. Because from where I am coming from it may not be psychological but feels like it can drive one out of their mind.....
please let me know if anyone knows something to stop these feelings....
.(JavaScript must be enabled to view this email address)
please and thanks for your insight....
Collembola-the most abundant anthropod on earth
http://www.infectioncontroltoday.com/hotnews/59h812451976037.html
Go ahead and tell your doctor about "Morgellons", I'm sure he needs a good laugh.
come on, I feel sorry for you all,,,,yes doctor don't know morgellons, and parasitologist thank morgellons.org is a rip off, where is the advice from 40 doctors on this????
this is a skin parasite which is prevelant in ASIA,,,it is her enow like Bird Flu which will do more damage than this this year in the WORLD,,,extimate 20M will die world wide,
see my pals site, pal, because his diet and plan helped save my life,,,,,get it and get on!!
http://www.be-healthy-forever.com
I knwo the man wnats to bag it and go out on his boat accross the world, but he really thinks he can help all out!
not me babe!!
get well!
joke....
"buzz off"
Find a freebee chat room to argue with people...
your views and sarcastic remarks make me hate that we are living in the same world...
As for you who keep bringing up scabies and lice... Come out of your dark age world... Lice is a bug... not a f**king parasite... and you can see it.... Save that for another rainy day...
But, as for those of you that feel your own veiws should be believed then why not allow someone else's views being looked into as well, but, no you obviously are a male... why do i say that? Egotistical, arrogant, self-centered....
Leave your arguements for the court room bud...
People come on line to discuss things to see if someone else has the same symptoms... not to argue with people... If you want people to see your side... where is your website Huh?
Get a Life... But, dont lash out at people when they don't even know what the hell they are dealing with... No one really knows until the facts are proven Right.... Are yours proven...
you don't want to see beyond the word "headlice" in http://www.headlice.org.
Yes, their mandate is to spread awareness about lice...BUT...when they started getting reports about this strange new skin disorder (which some refer to as "morgellons) the NPA decided to study it (along with the state of Oklahoma Health Dept)
What they found was that collembola (springtails not headlice) were infesting people.
Yes it is proven scientifically:
http://www.headlice.org/report/research/index.html
here's another independant study from swedish researchers in 1955 (which has been ignored by dr's):
http://www.headlice.org/swedish
Now, just because they say "headlice " in the web address, doesn't necessarily mean that they are talking about headlice. So try and work past that.
once again:
http://www.infectioncontroltoday.com/hotnews/59h812451976037.html
It's a species of collembola---and no they aren't visible--they are microscopic, in fact the first juvenile stage of these creatures are no bigger than a human liver cell--to top that off they are non-pigmented, so they blend in with you skin.
Collembola infestation=morgellons (you're not supposed to name a disease before it has been properly recognized by the medical community, the morgellons people don't understand that)
Understand the springtails are but one of the problems,,,look beyond that to Tropical Disease Creeping Neamtode of Borneo,,,spreading like wild fire,,,even CDC acknowledges it now. All the Morgellons symptoms and more,,,,so look beyound,these are larval migran mircoscopic worms,,,,see them in your skin,,,look like miniture veins, but they are not!,,,feet area.
And Collembellia (or whatever they are do eat nematodes!!!),,,where there is fire, there is something burning!!!,,,get it!!!
I know if you have real good healthy immune system you don't get this!!!!,,,food for thought,,,think next time when your at Dunkin Donuts!!!
joke....
"buzz off"
Find a freebee chat room to argue with people...
People come on line to discuss things to see if someone else has the same symptoms... not to argue with people... If you want people to see your side... where is your website Huh?
Does anyone else find it ironic that these views were posted NOT on a Morgellans website, but on the Museum of Hoaxes?
Good luck, and yes spreading like wild fire!
Mary Mahmud
.(JavaScript must be enabled to view this email address)
My findings are that it is a skin worm from South AMerica, creeped its way here. There are sightings all over the world with countries with smarter doctors!!
.(JavaScript must be enabled to view this email address) (marc from Safe2u-too!)
are you the same marc from safe2use who claimed his problem was the tropical rat mite?
Don't use the term morgellons, the CDC has already said morgellons is not a disease, you'll lose credability if you use the term morgellons.
If you think the so-called morgellons is your problem, then your best bet is to talk to these people:
http://www.headlice.org/news/2005/august/tiny_bugs_wreak_havoc.htm
Thanks all, take care.
I have to correct you, only the MORGELLONS FOUNDATION (most professionals debate) say it is Morgellons. Morgellons name is a term of the 1600's in France where skin worms (hookworm type) disease inflicted humans.
My doctor, and close to about another dozen doctors I spoke to say Morgellons is a self named disease/disorder by the Morgellons Foundation. Doctors and the CDC do NOT call it Morgellons,
Happy paper writing, but I am way ahead of you with state, federal government contact!!
skin worms like Creeping Nematode of Borneo is 99% what this is. Bottome line!!!,,,stick a foriegn substance in the USA, and you get new symptoms......BIRD FLU, SARS and other crap come from ASIA,,,so did this!!!
So, open your eyes,,,Morgellons excepts donations,,,what the hell have they done for this??? I did more as a sales rep for IBM!!!!, becuase I had to beat it and havea life again. The coach of teh Chicago Bulls, and a feww Very Important people have gotten this, and beaten this.
People should either diet (holistic) or go get Thiebendazole and take it for 2 to 8 weeks.!!
Simple, don't give this skin worm/parasite the Morgellons name, I personally think they are crooks!!!
For the record, I never said Morgellons was an actual disease, I never said doctors call it that, so talk about checking your facts, because that's what I've been doing. And I've already contacted the CDC, so I think I'm well off without your opinion.
Anyone who is not an ass can e-mail me if they would like. I won't waste my time here anymore.
Take care.
Cheers
Safe2use has been treating this for years!!!,,,it's eternal rat mites!!!,,see my skin Dr. Bozo,,,,leave now!
So "delusive parasitosis" (the Drs-clueless-so-call-patients-crazy disease;-p) is caused by either Collembola and/or the Morgellons infestations. Is this correct?
Have you read about association with Dental Sealants as a cause?
So how are Morgellon's Disease and Collembola related? Similar mite? Are Morgellon's in the order of Collembola? Do they respond to similar treatments? Is a Morgellon just a hairy collembola? What is the name of the mite which causes the fibers?
My collembola symptoms are (in this order) a reddened area, then itchy red bumps and then open lesions, then small black lines and black specs. Sometimes large collections of bumps appear. The lesions attract additional infestation.
Please, anyone feel free to provide any insights or feedback you may have. I believe I have a treatment regimen that I believe will heal and rid myself of Collembola in the next 4-6 weeks. I am eager to share what I have learned.
ddx in Chicago
I found out what is was, full diagnosis, and beat it wit diet,,,if you want there all prescriptions,,,,feel free to reach out to me.....beware of others here,,,,for they may want to do the ole,,,rippo-offo!!!
I am interested in what you say about having been prescribed thiabendazole for this. Would you be good enough to tell us the actual dose that you had, and exactly how long you had to take it? This is one of the azole drugs, used in worm infestations. Some scientists believe that the primary organism in this new disease is a fluke shaped nematode, which has other 'parts' to it, including mucus like worms, hairs, and the grey and coloured fibers. If this is so, I can see why you were prescribed medication from the azole group.
Please say more about the diet that helped you too. I do not see how a diet in itself would cure anyone, but it could certainly help, perhaps alongside medication, as you said.
I think that entrenched infection could attract collembola (which research has proven)and perhaps other arthropods.
Anyone with this horrible condition is likely to have, in addition to the brain fog, high levels of irritation. Please do not let this get in the way of realising when someone might be indicating the right answers, as that really would be a tragedy.
For those who claim to have been cured solely by diet, please post more details. I do not think it fair to expect anyone to pay for a diet sheet when they are so ill and desperate.
Marc, I hope that you tell us of the medication regimen that you were prescribed, thus allowing fellow sufferers to request the same, (or perhaps a similar drug), from their doctors.
With best wishes to you all,
Mo.
I cannot prescribe Thiebendazole, I am not a doctor.
40.00 for diet is peanuts!!!,,,buying the herbs and suppliments needed are big bucks,,,,
I am sorry that I charge to keep my site open.
If you can tell my bill sto stop billing me for a while that will help, until then, good luck!
my time is money,,,,sorry!,,I have a family and life.
If you want to get cured (and you will receive the prper way of curing yourself) go see my site http://www.be-healthy-forever.com
by the way,,,it is named THE CREEPING NEMATODE of BORNEO,,,now asia!
Take care, & good luck!~
marc and paul!
Good luck wart face!
Lester, customer service mananger
Infectious Desease doctors know what skin worm from ASIA this is. OK. Some form of CLM, OK!
Get on Thiabendazole pills for 60 days, get the hookhorm blood work ups, and stop waisting your time.
I happened to beat this holistically, and I have repeatedly asked this ASSHOLE firm to take me off the list.
Regular MDs don't treat this. Southern Doctors in ID/TD can fix up up or lay off the sugar for 90 days OK,
Good luck everyone, this site is clowns!
I've been researching since I was last here and found this topic is finally getting attention in scientific circles. Some of it reads like a sci-fi novel.
Morgellon's and Collembola are caused by separate, but perhaps related afflictions going on here-- and none of them are delusional. I found some amazing images a Morgellon's and they looked like hairy nematodes to me. Thousands of families around the world are reporting infestation. A group of scientists has been studying them -- did you know they glow under black and UV light? And they definitely move and jump, so forget the fungus theory. Early, unpublished analysis shows indication of labatory, or synthesized origins.
One reason there is so much controversy is that there are actually a number of crawling mites which create creepy, stinging, biting or crawling sensations...scabies, rat mites, bird mites (etc), collembola (springtails) and Morgellon's. Springtails, for their part, are highly opportunistic moving in existing infestations, which is what happened to me. I believe many sufferers of Morgellon's also have springtails biting them. (I'm lucky in that I only have springtails, and after reading so about the Morgellon's worms I want to know what I can do to avoid them!)
I'm going to order the diet, anything can help. I believe these are systemic infections which require an integrated and wholistic approach to curing them.
Good luck to all the sufferers out there. Read and learn as much as you can.
DDx
London re Garlic advice
Morgellon's are classified as Quorum Sensing, so as it turns out Garlic is an effective Quorum Sensing inhibitor. I would not only injest it but will try spreading directly on lesions and areas of infection. The abstract from the University of Zurich
http://botserv1.unizh.ch/site/site/research/projects/QSBlocker.php
describes how quorum sensing inhibitors "interfere with bacterial cel to cell communications".
In summary, all Morgellon sufferers should be ALL OVER garlic (I'm guessing part of diet plan referenced??). Yet another example of the powers of garlic!
Great advice, London, thanks.
DDX
That person is definitely on the right track. Srangely enough, many people have been cleared of this strange condition by receiving lyme disease treatment. Is this a rare form of lyme disease? Lyme disease is more common than many people think. I, at first, thought ofr ure there were bugs on me but it turns out that microscope images determined that there was indeed dermatophytic fungus growing all over my skin. A dermatophyte fungus causes the crawling sensations because it is a plant type fungus. that is, it actually grows roots- thus causing the sensations. Also the info which mialabu offered says that the airs attract each other. this sounds tru too as that's what it feels like.
Good luck everyone I know what you're going through.