Sufferers of Morgellons disease complain of invisible parasites biting their skin. And they get skin lesions from which sprout strange fibers. And mysterious black spore-like specks appear on their skin. Cases of this strange disease seem to be spreading, especially in the Bay area. One theory is that it has something to do with Lyme disease. Or it may be a case of mass delusion. The medical community seems to think it's mass delusion. Most people who show up complaining of these symptoms get diagnosed with 'delusional parasitosis', which is a psychological problem in which people imagine that they're infested by parasites. Not having any medical qualifications at all, I won't weigh in on whether this is a real disease or mass delusion, but some of the behavior of the patients does sound suspiciously bizarre. Take the case of Theresa Blodgett:
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I saw one of the nurse practioners. She spent about an hour asking me all kinds of questions about my symptoms, etc. I backed all the way up to two years ago when I first began to show some of the very first symptoms of Lyme Disease. (Although I did not even have a clue what Lyme Disease was back then. I started with a rash behind my ear that would not clear up. Then the flash of lights behind my eyes and then the awful
migraines and then the frustrating floaters that followed. I showed her all past medical records that documented all the different symptoms as they occured, including the vertigo, muscle twitches in limbs, face, especially under my left eye, sometimes the right one too.)Anyway, the list goes on and on, then we came to the skin lesions, itching, crawling stinging sensations, etc. I mentioned finding the fibers all over my house, especially in my bathroom and on my body.
She also examined my lesions.
She then told me that there was a rare, but newly emerging disease that was being called Morgellons!!!!
I told her I was VERY familiar with Morgellons and then went on to tell her about discovering the video showing pictures of people out in California who had sores that looked just like mine and who were suffering from the same symptoms!
She said, "Well, the research into this is all new, but supposedly the disease has been around for a long time, (like back into the 1600's I said and she nodded her head "Yes.") The she said, "AND ALL OF THIS HAS VALIDITY!" She also went on the tell me that none of what I was telling her was OUTLANDISH and that I was NOT CRAZY or DELUSIONAL! I was estatic to hear those words! She said she has a good friend in Texas who is a practitioner who is treating patients with the same symptoms.
She also went on to say she would be very surprised if I tested negative for Lyme and she ordered a barage of tests for Lyme, Lupus, thyroid, Babesiosis, Bartonella, Erlichiosis, etc. on and on! They took about 21 vials of blood!
So now I wait for 6 weeks for all of the results.
To all of you other "Morgellons" sufferers out there...OUR DAY IS COMING, when we will be able to hold our heads high and no longer feel reluctant to go to a doctor, ashamed because someone has labeled us "DELUSIONAL" and be able to get properly diagnosed and properly treated!
(Can anyone give me an AMEN!!!!!!!!!!!!!!!!!!!!!)
Morgellons 'is as real as a heart attack' and every other major organ failure. Because, that is what can occur in Morgellons' sufferers. The parasitic organism permeates the entire body.
By denying it as unreal, you are propagating it to untold numbers of people.
What would you, other than contracting it yourself, accept as proof of this heinous disease?
Progress is being made though for some answers.
PRUDENT!!!
Where did you come from???
Lyme disease...Morgellons...Lyme...Morgellons...
I see a pattern...
Tell me more...killing you???
My mom's extremely uncomfortable with this stuff. So far I don't have any lesions, etc.
What's your symptoms? What's your doc say?
No new info in it, though, except that someone apparently believes it's an alien infection from meteorites from Mars.
The rest is nothing new.
As for there being more new stuff on Morgellons, would you care to elucidate?
http://64.26.27.65/video/expanded.asp?ID=1844
1.) If all of the problem starts with french spring water, how come this is not a rampant disease in France, and, indeed, not all of Europe?
2.) People with AIDS and cancer are the ones affected, according to the doctor. Do whole families have undiagnosed cases of AIDS or cancer?
3.) Doctors say you shouldn't stop drinking bottled water? Why is this, if that's where it's from?
http://www.morgellons.org
http://cherokeechas.com/
#2 - The doctor was saying that people with AIDS and cancer have compromised immune systems and would be the most likely to contract a pathogenic illness. He was not excluding other reasons. There are entire families becoming ill from Morgellons that do not have AIDS or cancer, but many DO have Lyme Disease. I have a feeling the news broadcast perhaps edited out part of what he said.
#3 - The point the reporter was trying to make I think, is that if you have a healthy immune system, you need not be alarmed. (WELL - I THOUGHT I had a healthy immune system...until I got this!) I think they don't want to have widespread panic over drinking bottled waters, again...UNTIL MORE RESEARCH is done. (Hence, the need for donations to be made, so that the research CAN be done.) They could set themselves up for lawsuits I would think, if they are not sure the bottled waters in the US are not safe to drink as well. Keep in mind, Dr. Schwartz said (on the radiobroadcast made on 3/15/05 on RPN)he thought the bacteria may also be in community water supplies (which could explain the "pockets" of certain cities getting this.) (BUT HOW IN THE HELL DID I GET IT??????) I am STILL waiting for the analysis of my well water from the NC Dept. of Environmental Health - knowing their are two different bacteria there, but not knowing WHAT they are!
Hopefully, this answered some of your questions, although I am no authority on any of this. I am just wanting some answers as to how I got this and how to get rid of it!
http://mp3.rbnlive.com/Stadt05.html
SCROLL DOWN to March 15, 2005 show. You have to click on the 1hr (1st hour) and then 2hr (2nd hour) to hear both segments of the show.
http://www.e-bug.net/forum/index.shtml This is an exterminators web site question answer forum. go back in its archives to mid 2002 and scan all posts from then till the present and look for: whats biting me. small black biting bug. mystery bites. someone help please. fuzzy, fibers. etc etc etc.
I dont know of any clearer way to prove this is not a dillusion. to many people with the exact same story. its been spreading slowly but is really starting to pick up speed now. And if you still dont believe it... C'mon over here and give me a hug..
Cheese, Sugar, sweets, refined carbohydrates make it worse.
Hypothyroid makes it worse. Iodine makes it better, coconut oil makes it better.
There is none so deaf as those who will not hear.
I think many of us have had to take matters into our own hands to seek some sort of relief from the symptoms of this madness. However, I do hope that the research being done now will soon be able to enlighten the doctors who have dismissed these symptoms as delusional and begin to give their patients the proper treatments they deserve. I will keep you in my prayers and pray that you will get the chance to get treatment that will CURE this, not just give temporary relief! I selfishly want that for myself as well.
Hellooooooo ROD!!! and everyone else.
1.) If all of the problem starts with french spring water, how come this is not a rampant
disease in France, and, indeed, not all of Europe?
First and foremost, I don't think everyone in Europe, France, has their immuno-system
repressed from some illness.
Even though it's not in a "paper" in the AMA yet, it is a proven fact that people who have
Morgellons Disease are immuno-compromised and yes, there is emperical proof from
research about this, but like I said, no paper yet. For example, cancer, AIDS, Lyme
Disease, Erchilosis, Babesiosis, however, there is no answer as to WHY AND HOW it
is only attacking these people.
I don't believe saying it is in "spring water" from France is exactly accurate.
It is in 1/3 of the bottled waters imported from France, not neccesarily "spring water". 😛
2.) People with AIDS and cancer are the ones affected, according to the doctor. Do
whole families have undiagnosed cases of AIDS or cancer?
:blank: Let's be sensible...of course entire families are not undiagnosed with AIDS or Cancer,
however, entire families ARE being diagnosed with CHRONIC LYME DISEASE. This is
a condition in which a person has had Lyme disease over a period of years.
Did you know new research EMPERICALLY proves that Lyme disease can be
transmitted sexually??? Go in search for the truth...look up syhpillis and sphirochetes.:blank:
I have personally spoken with an entire family who has had this happen to them...only
ONE had Morgellons. Why??? Nobody knows...any thoughts???
3.) Doctors say you shouldn't stop drinking bottled water? Why is this, if that's where
it's from?
I TOTALLY agree with you on this one!!! Stop drinking it and now!!! My mom has
drank ONLY bottled water for about 3 years now, thinking that it would "be better for
her". Wow! This is the only source, and I mean ONLY source, that we and her doctor,
who is now a Morgellon's believer by the way, can come up. No other source, so far,
has given rise to believe otherwise. Any thoughts??? We have worn out our "thinkers"
on this subject of her Morgellons Disease. How else could she have become
contaminated???
And boy, oh, boy!!! She was sent back to the same derm for a third time last week.
That's 3 trips in 2 weeks and man, is her doc getting P.O.'d! She (the doc) doesn't
understand why in this world this man (the derm) keeps telling my mother that the only
thing wrong with her is Rosciesa (don't know if I spelled that right)! She has HOLES in
her face, neck, chest, AND arms for crying out loud! Now her doc is really P.O.'d!
(Keep in mind that my mother is also a diabetic type 2 and has high blood pressure
which she takes 3 meds to control.)
agent used to treat emotional and mood disorders. Inform your doctor of any other
medical conditions including heart disease (heart failure, history of heart attacks or
ischemia, conduction problems), diabetes, strokes (cerebrovascular disease),
dehydration (too little body water), seizures, dementia, swallowing problems, allergies,
pregnancy, or breast-feeding. THIS MEDICINE MAY INCREASE YOUR RISK OF
DEVELOPING DIABETES OR CAUSE HYPERGLYCEMIA (high blood sugar),
sometimes severe. Caution is advised when using this medicine in the elderly because
they may be more sensitive to the effects of this medicine."
Knowing she has these 2 conditions, and unwilling to put specimins on a slide, he gave
her this medication. :blank: :blank: :blank: :blank: :blank: :blank: :blank: :blank:
:blank: :blank:
I was out of town.
She called her sister the evening of the doctor visit to ask her to look this med up
because she was having all sorts of side effects.
She gave her the above info and my mom immediately called her pharmacist who told
her that the doctor (this brilliant...NOT...dermatologist), told him NOT to tell her what it
was for! Uhhhhhh...can we say malpractice 3 times fast?!
So she calls this dude and started giving him a raking because he KNOWS her
medical conditions, as well as all the meds she takes and he still gave this junk to her.
Can you believe at that point he started BEGGING her to take the medication???????
She told him all the crazy side-effects she was having and he told her to "take it,
please! Please, just take it!" She asked him if HE was nuts?
He said, and this is REALLY interesting, actually THE BEST PART OF THIS WHOLE
STORY...
"This medication is what I give everybody who comes to me bringing me stuff like this
with these symptoms."
:blank: :blank: :blank: :blank: :blank: :blank: :blank: :blank: :blank: :blank: :blank:
:blank:
What a shock to my mother's ears, huh? Everybody??? How many is Everybody???
2, 4, 10, 20, 100???? He is the only derm within an 80 mile radius of where we live.
Ah! You say he may have been making that up just to get her to take the medicine?
Oh, contrare, monfreir! I have a cousin who works in another county who says they
send patients to him with symptoms like that too. She said they send him SEVERAL.
Well, at least he admits it is not Rosceicia (?) anymore. Now the cat is out of the
proverbial bag and he can't put it back in! So, my mom proceeds to jump at this
chance and tell this @#^&*>)$@, that I have contacted a major television station in
another state, but close to us, she actually told him which one...I don't tell that info here.
Someone may wind up dead...
And that they are going to do a story just as soon as they get their May sweeps done,
which shouldn't be long.
she was going to tell them how doctors have been treating people with Morgellons
Disease.
At this point her phone went dead and he DID NOT call her back. She didn't call back
either...she'd had most of her say.
Now, I get mine with him.
My mom is 65. She is a spunky old gal. People mistake her for "a little old woman".
They get the shock of their lives when they try to pull something on her!
She is smart and extremely quick witted and sharp minded.
He's floating up Crap Creek. :gulp:
Hugs for all these docs who are in fear. Where is the hypocratic oath? Gone, I should say. None would dare investigate, none will admit what we know, yet none will EVER hug you.
If not, why not?
I have been in contact this afternoon with my internist. He wants ME to come see HIM. I must have gotten his attention with whatever I told my nurse. However, he is a brilliant, open-minded physician, who takes time and does his study.
He believes God (sorry Rod, I know you won't believe THIS) had called for him to be a doctor at the age of 13. He is now 47. He came here after years of practice from Memphis Tennessee. If you're from these parts you know that Memphis is notorious for producing excellent doctors. He came here because he knew that we don't have any really good physicians.
You have to put your name on a waiting list to get to see him. I was on that list for 2 years!!!
So, I have an appointment with him to discuss new information about Lyme, Erchilosis, Babesiosis, and Morgellons.
A microbiology professor at a local university is EXCITED about what they are seeing! I told him the folks that have Morgellons aren't too excited, but I hoped it moved him to action. It has...more to come.
I wish I could contact Dr. Joseph Burasscano. I've scoured the net looking for how to contact him and the only way I can figure to do so is to start contacting web sites that feature his name. Anyone know how to get him???
I am willing to fly to NY at this moment to become a patient if he'll have me. I wonder how many others that are aware of his work would do the same?
Bad, painful day...
Later
Nite raoul
A test was done in several motels and hotels across the country, some very high-class expensive ones, and all of them had these fibers on their supposedly clean sheets as well as other areas of the rooms. This was not done by a medical professional, as they surely could not be bothered with trying to figure this out, so it won't be published in any "Peer Reviewed" journals. But it's 100% accurate, nonetheless, and I hope you never spend the night in one of these places while your immune system is down.
More doctors and scientists know about this than are admitting and I daresay if we come to this forum two years from now, the discussions won't be about whether it exists or not. Instead, the posts will be from people begging for help!
BTW, Lymebusters is not a name for a disease, it's a place for people who suffer from Lyme and/or Morgellons, and the numbers are growing daily. The people who started it are totally dedicated to helping others. As for Morgellons, it was started by a Biologist whose son was suffering from the disease. The name is not important; through years of intensive research, Morgellons was found to be the only disease resembling what we suffer today so that is what it's called. And yes, there are many dedicated and brave doctors affiliated with Morgellons who will not stop until our suffering has ended.
I could care less whether anyone believes me or not, time will prove to be a downfall to all the skeptics, who will probably be suffering while we all are finally cured and getting on with our lives.
It will be pure heaven to see all those tables turned.
I am obsessed. I appear obsessed. What do YOU think I am obsessed with??? 😕
I think that I am obsessed with, or should I say "blessed with", ignorant, not stupid, dr.s who want to put my mom on a schizo drug because he thinks that she is just making these symptoms happen to her because she is delusionary of parasitosis. I am obsessed with the fact that Dr.s need to be made aware of what is going on with this disease, as well as Lyme and associated tick-bourne illnesses. I have an appointment with the top two dr.s in our county. One is an internest and the other a G.P. Funny, they are quite interested in what I have found and want further information from me.
If I appear nuts to you, you won't be the first. I've had one dr. tell me I needed a psyhciatrist because I couldn't pee. He couldn't find anything wrong with me, and he informed me that he doesn't believe in Fibromyalgia Syndrome so I must be crazy, huh? As in an earlier post, I stated I saw my Gyn two days later who had to dialate my urethra because it was almost completely closed.
But it was all in my head.
Does that sound familiar to anyone out there with Morgellons? Ask the people who have posted here saying they have Morgellons to reveal how they've been treated by their physicians.
As far as "delaying serious inquiry", in your opinion, it may seem so to you. However, I am a supplier of information to three dr.s and one t.v. station where I live. Why do they not see me as "rambling"? Because they see my passion and my commitment to the cause of getting people informed about what is going on. Because they see me wanting to seek out and reach out to others who have these diseases so they will know they are NOT NUTS!
My "ramblings" are points I make and my opinion. I am entitled to those, as you are yours.
Come walk in my world, annoyed, and see why I am on this board. There are those who need to speak and those who need someone to listen. I am both.
Hi Rod! Where you been???
you're not fooling me with that tooth filling story. I read that book as a kid, too.
I is all diet, I want share it with you. Once I committed myself to this, I shed off the mites, parasites and mange from my skin and surroundings,,,,I have helped a few people out there,,,you have to stay on the diet, which will not hurt you,,,,no pomegranite juice needed here.
For the past month I have been treated for Stenotrophomonas maltophilia infection. First 3 weeks I had extreme Headaches, Medium to High Fevers, etc., on a daily basis, which shows that there is a Bacterial Infection. I have 2 more months to go, about a week ago my Fever broke, and my headaches for the most part disipated.
I am slowly getting better. There are some vivid photos at
http://www.morgellonsusa.com
It is my Websight, however there is a great error that I need to fix,....
Where I called certain Cysts, (Lyme Borrelia Cysts) as they tested Negative for this.
I believe they are a form of how the Fibers grow in segmented links, compacted and hard until they burst open, the Cysts were from the Digestive Tract, and all other samples came from my skin,
Also, I found a glass bead in the bathroom once, that had the same Fibers growing on it, Wherever there has been Moisture,......
Stenotrophomonas maltophilia is known to grow on plastics, glass, etc.
Take care,
Jay- .(JavaScript must be enabled to view this email address)
I think that when unwell people take the time and trouble to discuss this awful disease we should applaud, not censure, their undoubted bravery.
From my research, it would seem that there may sometimes be a link between Morgellon's and a concomitant bacterial infection, as well as a link with certain parasites invading the body.
I most certainly do not think that people who are exhibiting the clinical features suggestive of Morgellon's are suffering from Delusional Parasitosis.
That is not to say that such a psychosis does not exist. Of course it does, but common decency should tell us that we should not be using this term pejoratively, because those who suffer from this are very ill.
What is society coming to, when the sick cannot expect either to receive an accurate diagnosis and treatment, or even much in the way of kindness and support from their fellow human beings?
I don't know who you are and that does not matter.I just want to thank you for your compassionate message here and you have stated the exact message I have wanted to convey but could not find the right words.
I am one of the sufferers of Morgellons and have gone through hell, but possibly not as much as others here have gone through.
I found an understanding infectious disease specialist, as well as friends who have helped me find alternative, agressive, natural treatment that is finally getting me well. It has been a wild ride and I want everyone who has suffered with disease to have dignity restored, proper diagnosis made available and treatments made available to get rid of this stuff readily available. We have "cracked the surface" in getting there, but we need more people with a voice like yours to help speed things along. Thank you, from the bottom of heart.
PS - To those out there who have been critical and judgemental - I am NOT delusional and I have returned to work in a very well respected position!
Good Luck! .(JavaScript must be enabled to view this email address)
http://www.dpref.com
I'm looking at your website now and you're funny as hell! HA!!! I love the delusions. They look EXACTLY like the delusions that I had!!!!!!!!
You know what? I think we've been mass hypnotized!
Drop me a line sometime at .(JavaScript must be enabled to view this email address)
that has to try and make a buck off other
peoples missery....you may indeed of had it
or a something like it....if i had the answer
to this plague!....I would gladly give it to everyone!....and my payoff would be in knowing
that i helped another person.
southcity
"collembola (springtails) found in scrapings of patients diagnosed with delusory parasitosis"
http://www.headlice.org/report/research/index.html
http://www.prweb.com/releases/2005/5/prweb241522.htm
http://www.prweb.com/releases/2005/8/prweb274087.htm
radio interview-07/15 WBAI Public Radio NYC
"when it isn't lice or scabies"
http://www.headlice.org/news/index.htm
If it were nematodes then nobody would be getting the delusional diagnosis
CDC-useless
Health agencies are aware, think it's a "fluke" and that it will go away on its own, and that's why they won't acknowledge.
I never buy Safe2use stuff.
Am being treated for collemboliasis.
Believe it or not--it's the truth--you'll see one day
who the heck are marc and steven-like i care
pHs nothing is invisible about this disease. As you can see he's quite photogenic.
and they are still finding collembola in people's skin scrapings.
I thought Springtails was a form of nematode. Nematode, springtail, hookworm these are all secondary. Focus on the bottomline. The fiber, the black specs and how our immunity failed us AND how to get it back, permanently.
My daughters friends at the local college say they just took this on as a study. I was relieved to here word is getting around. They, as I do, think it has alot to do with allergies and mites. That could explain the doorway. Let's wish them luck.
The NPA stands for the National Pediculosis Association, a non-profit health and education agency founded in the early 80's to spread awareness about harmful scabies and lice pesticide treatments.
NPA mission statement:
http://www.headlice.org/special/mission.htm
They got involved with this new situation because they started receiving calls from people with these strange symptoms and didn't think it was possible that all these people were delusional. And they been trying to help ever since.
You may have asian nematodes. If you've been diagnosed and treated and cured of it, then congratulations. There are many people who have also been tested for various parasites, including nematodes and have tested negative. Eventually these people are diagnosed with delusory parasitosis.
All the patients in the NPA study suffered from biting, crawling, rashes, etc.
Please just read it. It's a legitimate study conducted under the auspices of the Oklahoma State Department of Health.
http://www.headlice.org/report/research/index.html
download the full PDF file.
There are also other reports of collembola infesting man from throughout the past century.
If you don't want to believe the study then fine, i care not. BUT there are people out there who don't know what the heck's going on and are suffering, lives are being destroyed, people have killed themselves because of this condition, there are children suffering and all i would like to do is let them know about the study. Let them know that they are not crazy. knowledge is power u know. It's easier when you know what your dealing with. and hey why not, at the very least, rule it out?
So please stop making uninformed statements about the NPA, and the collembola research.
Go to the site, watch the videos, look at the pictures, read the press releases, listen to the radio broadcast.