Morgellons Disease: Is It Real?

image Sufferers of Morgellons disease complain of invisible parasites biting their skin. And they get skin lesions from which sprout strange fibers. And mysterious black spore-like specks appear on their skin. Cases of this strange disease seem to be spreading, especially in the Bay area. One theory is that it has something to do with Lyme disease. Or it may be a case of mass delusion. The medical community seems to think it's mass delusion. Most people who show up complaining of these symptoms get diagnosed with 'delusional parasitosis', which is a psychological problem in which people imagine that they're infested by parasites. Not having any medical qualifications at all, I won't weigh in on whether this is a real disease or mass delusion, but some of the behavior of the patients does sound suspiciously bizarre. Take the case of Theresa Blodgett:

She gathers up the black specks, the mysterious fibers and the small, fuzzy 'cocoons' she finds on her skin and around her home. She tapes the macabre samples to typing paper, but she said no doctor will analyze the collection. Physicians who glance at the specimens dismiss the lot as stray hairs, clothing fibers, scabs and other common household debris, she said.

So either she really is suffering from something and is desperately but unsuccessfully trying to get doctors to pay attention to her, or she's obsessively collecting house dust and stray flecks of dirt and convincing herself that these things are parasites attacking her. (Thanks to 'K' for the links)

Health/Medicine Psychology

Posted on Thu Feb 10, 2005



Comments

My husband is an entomologist (not in the Bay area - in the South), and his lab gets contacted several times a year by people with delusional parasitosis (same story...they've gone to every doctor/specialist they can find but nobody will believe them). They send in all types of crazy crap - scabs, dirt, etc. Of course, being the great person that he is he actually takes the trouble to look at this stuff under the microscope just to be sure that there isn't anything there. In all of the stuff he's been sent, he hasn't even found any insect parts!
Posted by Nymph  on  Fri Feb 11, 2005  at  04:19 AM
You never know; every so often there will be one real case in the midst of the mental patients. I recall hearing of a woman convinced she had some kind of insect in her throat, and it turned out, that she did; some bizarre throat worm thingy.

And then there was my brother in law, who had peculiar symptoms that his local (Georgia) doctor couldn't figure out, wasn't sure they weren't psychosomatic. He went to a specialist. "Gee, I'd swear you had malaria, but no one gets malaria around here!"

He'd just come back from his Peace Corps stint.
Posted by cvirtue  on  Fri Feb 11, 2005  at  06:26 AM
Looking at the photos on their website, I have to say, I'm stumped. Most of those photos look like nothing more than dead skin, dander, and carpet fibers, but not all of them. I once lived with an hypochondriac, and I'm inclined to believe that's what most of this is, butI also think it warrants some looking in to. It must be distressing to someone who suffers from this to be blown off by their doctor.

The person who made this site doesn't seem to have much science training beyond a freshman bio class.
Posted by JoeSixpack  on  Fri Feb 11, 2005  at  06:54 AM
I have had the song "Sugar, Sugar" by The Archies running repeatedly in my mind since I sustained a serious head injury in 1989. There's no insects involved, but it's kinda the same thing. You are my candy, Girl.
Posted by Hairy Houdini  on  Fri Feb 11, 2005  at  08:21 AM
Houdini, that's called "endomusia", and now I have that song stuck in my head. Thankyouverymuch
Posted by JoeSixpack  on  Fri Feb 11, 2005  at  09:18 AM
Don't you guys know that swapping music mind files is illegal. And Hairy should be paying royalties for use since 1989. But I wouldn't worry too much, Archie Andrews probably isn't smart enough to sue you. He's been in high school since the 60's.
Posted by Captain Al  on  Fri Feb 11, 2005  at  09:39 AM
If Archie Andrews has been in high school since the 60s, by now, he must be one of the smartest people around! And how does he keep that jalopy running all these years?
Have fun,
-barefoot ken bob
Posted by Ken Bob Saxton  on  Fri Feb 11, 2005  at  10:21 AM
Archie lives in Riverdale, where you stay in High School forever, like a bad dream. Unless Betty and Veronica show up. Pour a litte sugar on it, honey.
Posted by Hairy Houdini  on  Fri Feb 11, 2005  at  10:39 AM
sorry. I left out the L. (And you got me wantin' you)
Posted by Hairy Houdini  on  Fri Feb 11, 2005  at  10:41 AM
I went thru a few weeks over the summer where the song "I just wanna be your everything" by Andy Gibb ran thru my head, like a chain-smoking monkey locked in a radio staion, playing it over and over.
Posted by Hairy Houdini  on  Fri Feb 11, 2005  at  10:44 AM
"If you give a little more than you're asking for your love will turn the key"... it drove me mad, I tell you. Complete with violins and the three other BGs doing 3 part back-up harmony. Diabolical.
Posted by Hairy Houdini  on  Fri Feb 11, 2005  at  10:47 AM
Ever since the superbowl 'Baby you can drive my car' has been looping nonstop through my head. It's 'driving me' crazy.
Posted by The Curator  in  San Diego  on  Fri Feb 11, 2005  at  11:19 AM
Can't...
Stop...

Scratching!
(and humming!)
Posted by Chadds Ford Prefect  on  Fri Feb 11, 2005  at  11:19 AM
When I had teeth, my fillings picked up the local FM station. I'd hear a song in my head, turn on the radio, and that song would be on. It didn't play out of my mouth ike Gilligan, though. Just in my head. Barely drowning out all those voices, telling me what to do, and laughing at my really small... oh- hey... no hah hah no you're not gonna trick me... although I know that's what you're all planning... Step Off. It's little but it's sharp, and I know how to use it
Posted by Hairy Houdini  on  Fri Feb 11, 2005  at  07:51 PM
Had an older friend who had a heart attack and who got addicted on Demerol. He figured out that he had a problem when he saw small white worms crawling under his skin. Having been through the Normandy Invasion, Army buddies with post-war problems and having a little more smarts than most, he diagnosed it as drug addiction induced hallucinations and turned himself into the local drug rehab center. As he said, it was the most embarassing time in his life as he had always despised drug addicts and the hardest drugs he had ever done up to that point were Jim Beam and Camels.
Posted by martinelli  on  Sat Feb 12, 2005  at  09:11 AM
Who told you about Normandy? Was it The Council? Was it..."Raoul"? Tell me. I must know.
Posted by Hairy Houdini  on  Sat Feb 12, 2005  at  11:07 AM
There seems to be an epidemic of delusions of parasitosis with crystal meth. As someone who is currently treating several of these patients, one only needs to do a tox screen to figure this out. The Morgellons patients are nothing more than delusions patients, and I wonder how many of them have positive toxicology tests for crystal meth.
Posted by Skin doc  on  Sat Feb 12, 2005  at  10:00 PM
Papa John Philips (of the Mamas and Papas) went through that when he was addicted to heroin. He'd use tweezers, clippers, etc, to snip the worm out of his flesh, and put them in jars and take them to the doctor. Of course, they never found any worms,and I'm sure he had hideous gouges all over his flesh.
Posted by catlady  on  Sun Feb 13, 2005  at  05:50 AM
so... it Was "Raoul", eh?
Posted by Hairy Houdini  on  Sun Feb 13, 2005  at  12:55 PM
If Morgellons Disease is just delusional, some form of parasitosis, then are the doctors, etc. that are researching it delusional also?

The Morgellons Research Foundation is looking into this mysterious malady, which has now been reported in all 50 states and a number of other countries:

http://www.morgellons.org/
Posted by Sarcastikus  on  Wed Feb 16, 2005  at  09:35 AM
OK, Sarcastikus, I have checked out the website and I'm sticking with my assesment that it seems to have been authored by a non-scientist (not that there's anything wrong with that). There seems to be only one person on the staff with a Phd (Douglas Buckner, Ph.D), and when I google him he's a bit invisible (as comparison, my brother, who's a Phd, shows up lot's of places becaused of published research work he's done). Is he an M.D.? What are his credentials?
Posted by JoeSixpack  on  Wed Feb 16, 2005  at  11:32 AM
There are 1200 people all over the US, in Canada, Australia who report the same symptoms and have in fact through the miracle of the scanner on the computer match up exactly these dermal entities.
There is absolutely no question that this is the same disease manifestation. Being a Registered Nurse of sound mind and definately not drug addicted, having this same skin ulcerating condition, I can say without hesitation this is a new and emerged disease that the public might well pay close attention to. For as long as CDC and the Public Health Departments prefer to ignore this situation, it will continue. There are now so many people coming forward that news releases are now showing up all across our nation. This particular disease is by no means delusional.It all looks exactly the same under the microscope.
Posted by newnemerging  on  Thu Feb 17, 2005  at  06:19 PM
http://www.mskcc.org/mskcc/html/48521.cfm

Read what defines research and scientific development.

And yes I'm comparing Morgellon's research and development teams to this Nobel Laureates abilities and idealogy.

Because all it takes is the desire to unravel the unknown. To seek better health through a microscope with stains and petri dishes without the aid of big institutions is daunting. Why people feel the need to run down people who are trying to help other people is beyond me.




Science is truly a revolutionary path to follow," he said, because it can lead to major changes in world views that are often met with great opposition. He cited Galileo and Darwin as two scientists whose ideas challenged the standard beliefs of the day. "Science will constantly reshape and enrich our culture, and without it, then culture and society will be seriously impoverished. But it challenges existing dogma and it causes fear as a consequence."

Dr. Nurse believes that
Posted by dkinaz  on  Thu Feb 17, 2005  at  09:07 PM
dkinaz,
what does any of this have to do with morgellons disease?

Newnemerging, do you know anything about this "Morgellons Research Foundation" and Douglas Buckner, Ph.D? Are they a legitimate organization?

Where can I find out more about the disease?
Posted by JoeSixpack  on  Thu Feb 17, 2005  at  09:42 PM
Hi Joe,
I'm a middle age woman, own my own company, non drug user and no alchol and I don't see worms or bugs of any kind whatsoever....ever.

I do have symptoms that resemble many of those written about on the Morgellon's website, and that is where I suggest you go to seek the information you desire.

I thank God everyday that this website is there..thinking I was the only person in the world with such strange things was terrible.

So sorry the ambience or it's appeal isn't your cup of tea. It was donated to the founder and has been a great source of comfort and appreciated by all who go there.

If you want to know more about the Foundation and the members why don't you go to the site and email the founder. She'll answer anyone's questions and she doesn't ask for anything from anyone.
Yep they're legit. I've known the founder for several years now and she's for real. Just like our symptoms.

Many people have tested positive for bacteria/Lyme and others have yet to be diagnosed.

I've not had a DOP diagnosis, doctors know something's wrong, they just can't figure it out, and they're the first to admit it. Fortunately for me, I'm not nearly as ill as some of the other registrants.
The reason I wrote what I wrote seemed obvious to me. Sorry it seemed puzzling. The main thing I wanted to leave on this particular site was this excerpt from the first message I left.

Excerpt

Science is truly a revolutionary path to follow," he said, because it can lead to major changes in world views that are often met with great opposition. He cited Galileo and Darwin as two scientists whose ideas challenged the standard beliefs of the day. "Science will constantly reshape and enrich our culture, and without it, then culture and society will be seriously impoverished. But it challenges existing dogma and it causes fear as a consequence."

End of Excerpt.

I just thought of something, this site is generally used by those who look for pessimistic happenings. So I can see why shades of gray would be slightly less than welcomed here.
Posted by dkinaz  on  Thu Feb 17, 2005  at  10:47 PM
The people suffering with symtpoms of the skin
is real however the name Morgellons Disease is not. There is no currently accepted disease nomenclature to be found other than what they have self-promoted. This group also call itself Lymebusters. Many liberties appear to be taken without scientific basis or accountability.
Posted by Perry Mason  on  Fri Feb 18, 2005  at  03:38 AM
Found one scientific article on the subject. This looks to be quite legitimate:

http://www.headlice.org/news/2004/delusory.htm

http://www.headlice.org/report/research/jnyes.pdf
Posted by Perry Mason  on  Fri Feb 18, 2005  at  05:32 AM
I've suffered Morgellons (a real disease, by the way) for many years. I fought this for so long, I just knew there had to be a more logical explanation. But nothing else makes any sense and I am totally sane, not addicted to any drugs nor do I drink. It's not delusional but believe me, many of us who suffer with it wish it was. What we've seen and endured goes beyond what most of you skeptics could ever handle.

If you did your homework, you'd know there are very few true cases of true delusionary parasitosis. And you might just want to inquire as to why the drugs used in treating this condition all contain insecticides. Coincidence?

Aside from the fact that there are well-deocumented cases of insects getting into people's skin (and being drawn to them via some type of fungal infection), Lyme disease also affects the nerves in a way that makes you feel like something is crawling on you.

Many Morgellons sufferers have tested positive for this new type of Lyme and you would be doing yourselves a favor to research this a bit. It's epidemic in this country now but the REAL question is why this news is being kept under wraps????
Posted by WiseOne  on  Fri Feb 18, 2005  at  07:32 AM
It's very real. Do the research. The skin crawling sensation is due to a bacteria that has a flagellum (foot) that waves back and forth allowing it to move, thus causing that creepy crawly feeling. Can you imagine millions of these things in your body? *shudders* These organisms create a web-like substance that anchors them in place. Doctor's have seen these fibers in the skin and around the leisions.
When mainstream media acknowledges this bizarre condition/disease then people will "accept" its reality.
Posted by hourglass  on  Tue Feb 22, 2005  at  03:09 AM
As of late, this disease has often been the in the news and highlighted on Coast to Coast a.m. with various experts on the subject.
I'm certain it'll definitely get people thinking and put them in the "know."

Tonight (feb 21) the doctor mentioned that this bacteria was found in bottled water. Gads. I gotta research this more.
Posted by doppleganger  on  Tue Feb 22, 2005  at  03:15 AM
My mother has Morgellons. This is a very real disease. I have seen these things she picks out of her skin, lips, nose, etc. It is quiet unsettling as noone knows what the outcome is for Morgellons sufferers.
Is anyone aware of the string of "deaths" of microbiologists around the world in the last few years? Some of them were studing " NEW EMERGING DISEASES". Now, let's see, is something not a disease because we've never heard of it or seen it ourselves??? Wonder what was going through the mind of the person/persons who were diagnosing the first case of Alhiemers Disease? (sorry 'bout spelling!) The first case of PMS? I actually went to a doctor 3 years ago because I could not unrinate! I could only go so much and then quit. It didn't feel like the usual bladder infection feels (you ladies know what I mean!). There was no pain or burning I just couldn't go! I also had something else happening with my body called "hot spots". It felt in spots on my body like 105 degree temp. It was extremely uncomfortable. When I explained these symptoms to my sis-in-law, she said that's what she experiences with her disease, Fibromylagia. So, I went to this doc who told me he didn't believe in Fibromyalgia and that I needed psychiactic help. He couldn't find Hmmmmmmmmm.....went to my gyconcologist two days later and he couldn't believe my urethra was only completely closed. He had to dialete my urethra! The blessed joy of being able to relieve myself returned IMMEDIATELY upon the completion of the procedure!!!!!!
Gee, I guess I had "delusions of urinitosis" until a doctor found I actually didn't think myself into "not unrinating"! Now, I ask you, do I sound a little aggresive? If so, I apologize. I am just so sick and tired of doctors looking at people and telling them "it's all in their head". I am sick of doctors not listening to the patient, and that can only hear the lectures of the "psycho-somatic" conditions ringing in their heads. Do you think the first AIDS patient was "delusional"? I wonder if anyone paid attention to what was going on with him, or was he simply shrugged off as someone who needed "help" until he died?
I totally agree that there are many things that people can become "sick" with just because of stress or mental illnesses. However, just because we can't see them doesn't mean the illness is not there. We can't see coronary disease, but it is real, wouldn't you agree??? We can't see HIV, but we know it's there and we don't see it until it manifest itself AIDS. We can't see Rhuematoid Arthritis, until it starts to twist and knarl the joints in a person. I can tell you from first hand experience that RA is very real and VERY painful. It has to be to be literally making the bones and joints take a new shape.
We need to give people the benefit of the doubt when they tell us about symptoms that we may not be able to see, (such as a headache).
I think I've had my say, thanks.
Posted by jaleenasmom  on  Wed Feb 23, 2005  at  11:31 AM
Very well put jaleenasmom!
And yes, I too have heard of the numerous deaths of microbiologists, what? Isn't in the 50's now, over the past couple years? Kinda scarry if you ask me. Something's certainly going on there with out a doubt. Many people seem to think it's govenment realated. I don't know. It's a pretty sickening and disheartening thought though.
And the doctor's definitely need to acquire "listening skills" when presented with such issues and not play the physisian referral or "pass the buck along" game. It's costly and insulting!

I just *know* that more and more light will be shed on this peculiar disease and soon it will have its place in forefront of medical journals.
Too bad it has to be this way until then.
Posted by hourglass  on  Fri Feb 25, 2005  at  01:46 AM
:coolsmile:
Thank you, hourglass! I feel to that it will soon be getting more attention as I am on a vendeta to see that it does. I have contacted one t.v. station in our area as of yesterday, and I have about 7 more to go. Lots of stations within a 200 mile radius of us and at least people in Tennessee, Kentucky, Missouri, Illinois and Arkasas will know what they have or be able to maybe identify it. At least they will know they're not NUTS. 😛
The body count of microbiologists is up to 79 since about 1984. At first it was rampant, it slacked a while and then started full force again.
That # is NOT including the 5 microbiologists that died when their plane was shot down by "an errant surface to air missle that was 100 miles off course". Yeah, right. I have ocean front property in AZ for anyone who believes that one.
Reports coming from Iraq tell of at least 300 scientists and microbiologists being executed.
Wonder why there were so many in IRAQ????? Why would Saddam have needed over 300 experts in Iraq??? Can we say "biological warfare"?
Given that this is true. I don't know the source of that information so I am taking lightly, but no TOO lightly as I wouldn't doubt anything completely right now.
As for who is behind it, there are several theories out there and unfortunately ALL of them make sense!
IF some of these scientists did actually have a cure for such diseases as Mad Cow, Alzehiemer's, ebola, flu, and figured out how to alter genetic make-up by using DNA, why would they have been killed? It's not likely government driven as it is Pharmacuticle company driven. Have they become more powerful than any government of earth?
So many theories, but I do not believe we will ever know the truth. The last death that occured January 7 of this year troubles me the most. Found having been stabbed repeatedly, put in the trunk of his on car, which was then set on fire, and burned is quit unsettling as no one saw anything! How? This happened in a Maryland parking garage.
It's scary when you know scientists who possibly had a cure for terrible diseases and was working on "new and emerging infectious diseases" are getting knocked off.
More later!
Posted by jaleenasmom  on  Fri Feb 25, 2005  at  06:46 AM
Believe this is real. This disease is spreading and pray your family doesn't get "dilusional". A friend of mine actually has this. After much research trying to help her I found that a majority of Morgellons patients are highly respectable nurses. So that should tell you something right there. Not only this is a real thing but it has a good chance of being contageous. Beware ... it could happen to you. And no one will believe you. It's a very sad story. Do your own research on it and come to your own conclusion. I guarantee it will make you think twice before you judge.
Posted by A believer  on  Mon Feb 28, 2005  at  02:56 PM
I don't know what is the matter with people who set up websites like this - I suffered (badly) from CFIDS for years and NOW it has been recognized by the CDC as an actual illness, and by Dr. Garth Nicholson as an illness with a cause (mycoplasma infection - same as Gulf War Illness and Fibromyalgia) - don't be so quick to believe STUPID DOCTORS WHO DON'T BOTHER TO DO PROPER RESEARCH - Most MD's seem to be part idiot when it comes to looking into anything new - it may interest you to know that MS was considered a hoax in the 50's and the sufferers were labeled "malingerers" - just like the CFIDS sufferers after them. Here is some info on Morgellons:
Dr. George Schwartz of the Healing Research Institute shared his research into Morgellons Disease, the baffling skin ailment that produces crawling sensations and the appearance of odd fibers. After culturing a sample from one of his patients, a bacteria that was a variant of Pseudomonas was discovered. It is found in some bottled and spring waters, he said, and was previously considered to be relatively harmless.

Schwartz speculated that because the bacteria has flagella (whip-like structures used to move), this may be what causes the itching sensation in those afflicted. "We're witnessing an epidemic of this condition," and at least some of the cases are caused by this organism, he declared. He was able to greatly reduce the symptoms in the woman who had the bacteria by giving her high doses of a sulfa drug, he added.

DONT be a dumb 20 something male who thinks he's smart because he's a SKEPTIC - you will eventually turn into a hard headed 40 something male without a clue.
Posted by AS  on  Mon Feb 28, 2005  at  05:33 PM
I'm sure I'll do my best not to be a 'dumb 20 something male'.
:roll:

Although I have to add that I believe skepticism is healthy.
Posted by Boo  on  Tue Mar 01, 2005  at  02:36 AM
:coolgrin:
See that smiley, boo? That'll be the woman you marry if you wind up a dumb 20 something, I know because I've already divorced a 40 something without a clue!
My mom has started treatment today and has discovered this disease on my step-father. He is in a nursing home which her doctor can't go into so she will have to start taking him to her and soon. He is wasting away and his mind is worse everyday. She says that his case is MUCH worse than hers, so she probably caught it from him.
You are correct, a believer. Lots of reputable nurses have this disease which could mean that people have passed through their station under their care and passed it to them without the patient even knowing that they had anything to pass. And contracting this from water may be something of a working theory now. I have contacted several people who say they do not drink bottled water or tap water anymore. They have their own distillers/purifiers. I have contacted one person in UK who also doesn't drink water "normally" anymore. He too thinks he contracted this by water.
Posted by jaleenasmom  on  Tue Mar 01, 2005  at  08:55 PM
I have answer how to terat Morgenllons, yust contact me
Posted by Lazar B. Kostic  on  Wed Mar 02, 2005  at  12:10 AM
This disease is nothing to laugh off. Read up on bioengineered substances being sprayed for agriculture. Read up on stealth viruses.
Whatever this disease is it is not made by nature.
I have lived with it for 7 years, I know.
have a look. http://photos.yahoo.com/pookalala
Get yourself a good magnifying glass and take a look for red and blue fibers in your hair brush.
Posted by Greema  on  Wed Mar 02, 2005  at  12:44 AM
Jaleenasmom, I'm already 20-something, by no means dumb, and I'm female. Other than that you're spot on.
I know some people get so set in their opinions that they are not open to any other views. That happens on both sides of the fence. It's just something you have to deal with. Personally, as I said in my first post, I think a certain level of skepticism is healthy.
There is a certain lack of evidence about this disease, despite there being so many people (you
mention 'lots of' reputable nurses) who claim to suffer from it. People are postulating different theories as to where it comes from.
So at the moment, until there is some more evidence other than personal statements, I cannot say that this is definitely real. What you were saying is very sad, but you are just a faceless name on a computer screen and, as such, could be making the whole thing up.

Phew.
Posted by Boo  on  Wed Mar 02, 2005  at  02:42 AM
Questions Questions, so many Questions.

What is this Coast to Coast thing? Is it like the U.S Version of Kilroy?

And why do people insist on believing everything they read? There is a song, the title of which escapes me now, but that goes 'Son, believe half of what you see and none of what you hear'

This post seems to be 'mad scruffy people get scabbyitis. Mystery disease suspected. Government cover up. Doctors lie and cheat in case people find out. People up in arms, my Mom/Dog/Friend/Aunties Neighbour etc had this disease where they were covered in scabs, but doctors wouldn't treat them'

I mean. really. and then, someone mentioned Doctors don't believe in MS.

that should be ME. and it's not that doctors don't believe in it, but that the symptoms of ME are lethargy and tiredness. so that could mean EVERYBODY has ME. I have Windows ME, that is lethargic and tired. and also, is the plural of Haggis Haggii?

Greema, if you hav red and blue fibres on your hair brush, I'd probably stop wearing that stripy hat.

I can't wait until I get into a position of power and find out all you nutters are right about these cover ups, Area 51, contrails etc...

If Raoul is reading this, I didn't see a thing...
Posted by matzusdog  on  Wed Mar 02, 2005  at  09:16 AM
:lol:
💋 Matzus.

And yes, the plural of Haggis is Haggii. Or it should be, anyway.

😜
Posted by Boo  on  Wed Mar 02, 2005  at  09:30 AM
Hey Matzusdog ,
I wish I had a stripey hat to blame this disease on. If reality scares you that much then you better get the hat and keep your eyes wide shut. I've paid hundreds of dollars to physicians to hear their ignorant words. Thanks , it's refreshing to get them as a freebie.

Greema
Posted by Greema  on  Wed Mar 02, 2005  at  11:31 AM
It really amazes me that some people can be so narrowminded and misinformed...(I might throw in ignorant as well.) Please do a bit more research before you casually dismiss all of these suffering people as having delusional parasitosis. Thank God I found a doctor who believed me and took biopsies of my skin and the lab actually found something. They even sent the biopsies to Raleigh where they confirmed a bacterial skin infection. I am being treated with antibiotics right now and other herbal remedies. Without the proper treatment these patients who are being labeled "delusional" will only continue to get sicker. Some will die or commit suicide, because unfortunately part of this disease is disorientation, "brain fog" and extreme dizziness and feelings of overwhelming fatique. People are NOT making this up. I am NOT making this up. My biopsies prove that. My symptoms prove that. Yes, there is a real disorder called "delusional parasitosis" but that usually occurs in people who at a later stage of confirmed mental illness. Delusional parasitosis does not happen out of the blue to well-educated, well respected, professional people, nor to WHOLE FAMILIES and to a cluster of people living in the same neighborhoods. WAKE UP PEOPLE! WAKE UP DERMATOLOGISTS and SCIENTISTS who can't see what is REALLY going on here. And I agree with the post above mine...so are the doctors that are finally "getting the picture" and giving proper diagnosis and getting their patients well and able to live normal lives again delusional as well. Actually, I think it is the doctors and scientists who so lightly dismiss their suffering patients who are the ones that are delusional. They think they KNOW IT ALL! I think I just might become the Erin Brockovich of Morgellons. I am just getting so mad!
Posted by Victoria Moore  on  Thu Mar 03, 2005  at  08:50 PM
It is absolutely amazing to me that there are so many misinformed, na
Posted by Victoria Moore  on  Thu Mar 03, 2005  at  10:36 PM
To the person who keeps posting as different people but is obviously the same perosn because not even the writing style ever changes....


Go home. Pick a scab or two. Have them analyzed by a lab that will say anything but "this person is delusional" and maybe six or seven people will believe you.
Posted by Rod  on  Thu Mar 03, 2005  at  11:35 PM
Hey Rod, your first name isn't Nim is it?
can you really afford the karma?
Posted by Greema  on  Thu Mar 03, 2005  at  11:50 PM
:P First of all, matzusdog, matzusdog, matzusdog! Don't rush to judge. Do you KNOW anyone who has this disease? Have you seen the things that people as Morgellon's sufferers have to go through? Have you had a first hand look at what these lesions look like? What you can see coming out of those lesions? Have you seen part of anyone's body getting holes eaten in it by this disease???
I have. My mother. I have seen what she goes through. What these lesions are doing to her. How they are eating holes through her nose, and I do mean THROUGH her nose! Whatever is eating my mom's nose just keeps eating and eating leaving behind necroting flesh. I am beginning to wonder if any doctor will see that something is wrong with her when her nose isn't there anymore! Maybe then they will finally look at her and say, "Well, maybe this isn't ROSCACIA after all." Lots of good that will do her then, eh? What do you think you would feel if YOU looked in the mirror every morning at a holes in your skin that just keep getting bigger and your doctor tells you it's just roscacia? Or you have one doctor tell you that you are being delusional? Only to find two weeks later that the holes are double in circumferance and depth? Would you begin to wonder if you were really delusional or if the doctors were delusional???

WAKE UP. This can happen to you at any moment, right now, in this time, and everyone will tell you you're just crazy. My mother, I, and my sister have all been put on anti-depressants and told to seek "professionl help". Funny, I thought we WERE seeking professional help by consulting a doctor.

Have the 3 of us become delusional about fatigue so bad that you don't even care if you eat, take a shower, get your bills paid, clean your home, drive, shop, go out to eat??? Have you ever awoken because you were trying to roll over in bed and you couldn't because the pain was so intense you felt like your entire spine was being ripped from your body??? And, after you were able to FORCE yourself over, do YOU awaken each morning so stiff you do good just to sit up in the bed???

I have been doing the last two listed for YEARS, and I am only 38. My sister also for YEARS and she is 31. My mom also and she is 64. Doctors can't blame this one away. All of the above mentioned, except for the lesions, we all 3 suffer. You know, we all have different doctors and my mom's is the only one beginning to take this seriously??? Dr. Jan Simms has finally realized that, even though the above mentioned symptoms can be attributed to depression, the lesions cannot. She also realizes that Roscacia dosen't cause lesions like this on the rest of your body. That illness is supposed to be confined to the face.
Posted by jaleenasmom  on  Fri Mar 04, 2005  at  03:34 AM
conclusion: to Rod also...
At first she could not accept what my mother was telling her, but when she saw the lesions and the information on Morgellon's, this little hick-
town doctor became smarter than some of the greatest doctors of our time. She actually has more common sense than the CDC.

Did thousands of people all wake up at the same time and become "delusional"??? Come now, if you say yes, you are foolish. A foolish man only hears the beating of his own heart and his mind is closed to NEW ideas and discoveries.

I have heard it said that it is better for a man to be THOUGHT a fool, than to open his mouth and remove all doubt.

Have you had your joints swell??? No, I don't mean muscles, I mean your bones??? Have you ever had a broken bone??? If so, can you remember the pain??? If not, I don't know any other way to describe to you the pain I feel
EVERYDAY of my life. If the lethargy doesn't keep me down, my left wrist and my left knee and my right foot will.

This by no means is all the symptoms that we 3 experience. It's funny how people who've never met, thousands of miles, even continents apart, have all become delusional with the EXACT same symptoms.
To me, the oddest thing of all is that NO ONE who lives with a Morgellon's sufferer thinks they are delusional and everyone else thinks they are.
Posted by jaleenasmom  on  Fri Mar 04, 2005  at  03:38 AM
Also, I don't know anything about area 51 except that it does exsist...I have seen it with my own eyes.

Secondly, I don't see the government covering up anything, what I see is them turning a blind eye to this disease.

Thirdly I have an idea that maybe YOU are the one sticken with ME. ME, I'm right, ME I'm too intelligent to believe this, ME, I think these people are looney, ME, I have trouble with plurals, and lastly, but not least, ME, I have trouble discerning abnormal (contrails, maybe this is from Mars) thoughts from normal thoughts. Normal thoughts being that AIDS is real. Normal thougts that Chronic Fatigue Syndrome is real. Normal thoughts that tell you to remember a time in American medicine when these two diseases WOULD NOT BE recognized by the medical field but are now known to be VERY REAL. Normal thoughts that tell you, yes, man HAS actually walked on the moon.
Oh, wait, did you go to the moon and actually WATCH those guys walk on the moon??? When my 100 year-old great-grandfather died in 1979, he went to his grave NOT believing that man had ever even made it to the moon, much less walked on it. But he was a little senile.

Fourthly, MS was considered a hoax in the 1950's. Doctors told these people that they were just lazy.

I am 38 with a 16 month old baby girl. I was told by doctors that I would NEVER be able to get pregnant and if I did I would NEVER carry that baby to term; that I would have a misscarriage. Then I was told I was going to have a down-syndrome child. Guess what. She's not. She is in perfect health. Doctors DON'T know everything. Seems to me with the given pattern that exsists today in conventional medicine, that doctors are becoming "Delusional of down-syndromitis".

I would love to just pick a scab and "get it over with" because sometimes I can't pick my daughter up, the only child I will ever have.

AND FOR ROD: The doctor's name is Dr. William Harvey and he is located in Houston TX. You know, the one who has quit his PRIVATE practice to devote his time to researching Morgellon's???
And not just him, there are others. I've got his phone number if you would like to call him. He charges $300 per hour for phone consultation.

Dr. Charles Crist from Springfield MO. I have his number too, if you'd like.

Or, maybe you won't contact these doctors because they will tell you something you don't want to hear...that ME is wrong.

😉
Posted by jaleenasmom  on  Fri Mar 04, 2005  at  04:15 AM
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